Posted on

Amputee OT Shows Us How to Have Fun With Adversity

I found some information about Christina Stephens, the amputee who made herself a limb out of LEGOs. The video of her making the leg was inspiring on its own, but there’s more to this woman than becoming a YouTube sensation.

It turns out she has made a series of videos about life as an amputee. Here’s footage of her the day after her amputation:

Her YouTube channel has dozens of clips of her learning to live without part of her leg and mastering the use of her new prosthetic. She also has a Facebook page.

Stephens, a practicing occupational therapist, clinical researcher and peer educator, was working on her car in mid-January when its supports gave way and the car crushed her foot. In one video, she shows viewers her black toes and explains why she chose to have her lower leg removed instead of trying to salvage it.

Through it all, her humor and grit is on full display. The LEGO project has gotten much of the attention because LEGOs are fun. But most of these videos are fun, because that’s the approach she decided to take. I’ve never lost a limb, but it has to be one of the more traumatic experiences a human being can have. I’m sure she’s having her share of inner pain. But she’s showing others that something like this isn’t the end of the world, that living life to the full is never beyond our reach.

It comes down to attitude.

We’ve seen a few stories about amputees displaying grit and courage in recent months, in the wake of the Boston Marathon bombings. They smile for the camera as they go through the painful process of getting on with artificial limbs. One of the best examples is that of Jeff Bauman, who lost both legs in the attack. Some of the most dramatic photos of that day are of him being rushed from the scene in a wheelchair, his legs clearly blown to shreds.

I’m sorry they’ve gone through this. But I’m also grateful to them for showing us the way. We’re all lucky to have them around.

Amputee OT
Photo courtesy of Amputee OT.

Posted on

A Super Analogy About Mental Health and Summer

I’m in the middle of a campout as I write this, and though some of those around me are wilting in the 90-plus degree heat, I have to admit that I’m loving it.

Mood music:

It’s not that I enjoy the sweating and humidity-saturated clothing. What I enjoy is my mental state during long, sunny days. I’m always in better humor, more creative and more in the moment than I am in the dead of winter, when I’m more given to depression. The sun seems to play a role in balancing my brain chemistry for optimal performance. This is often called Seasonal Affective Disorder (SAD).

The new Superman movie, Man of Steel, presents an interesting analogy for me. Superman gets his strength from the sun. His Kryptonian cells drink it up and become batteries that propel him to great feats.

I remember one Superman comic book series in which the sun temporarily goes out, and Superman’s powers go out with it. The sun returns, but it takes some time for his powers to come back because his cells require a lot of time to recharge.

In a similar fashion, my optimal mental health doesn’t appear immediately after the clock springs ahead for more daylight. This past year, in fact, some of my most winter-like behavior surfaced mid-spring. But once the sun seeps deep into my brain chemistry, I’m good. Very good.

My goal is to get that state of mind to last longer and longer. That my mood fluctuations got worse in spring may actually be a good sign. Usually they rear their ugly heads in early February. That could mean progress. Or it could just be coincidence. I also admit that some of my spring-time brooding was the result of months-long uncertainty about where my career was headed.

I don’t know what the future will bring. I only know what I’ll be doing to make it as good as I can.

For now, I’m just grateful that we’re in the tight grip of summer.

Man Of Steel

Posted on

Perception or Reality?

A couple friends who were at the 1992 Lollapalooza show I recently wrote about agreed with my general retelling of events but experienced something much different than I did.

Said one: “I guess it’s true: Perception is reality.”

Mood music:

I couldn’t agree more. It reflects a point I’ve repeatedly tried to drive home: The events I describe in this blog are based on my own personal truths, the most accurate retellings I can offer. But I know my perception of things isn’t exactly the whole picture.

I’ve heard from family and friends over the years who have suggested that my take on particular events was different from how they remembered them. One family member whose privacy I’ll respect here told me that most of my childhood memories are fabrications.

Many people tend to see the world in black and white. Something is either the truth or a lie. Nothing in between. I’m not one of those people.

From my perspective, we all see things our brains try to interpret as honestly as possible, but there’s no objectivity. We have built-in biases and perceptions of the world around us. The result is that if you put 10 people in a room and something eventful happens — a fight or medical emergency, perhaps — two people will tell you what they saw and it’ll differ from what three other people saw. The rest of the room will add different perspectives to the story. This is especially the case if you ask those people to describe the event a year or more later.

In the case of that Lollapalooza show, what I saw was filtered through a brain that was off-balance and sick, which made my memory one of terror. Others will tell you that they were there and were not afraid. They just had a good old time reveling in rock and roll. Some will have seen events through brains that were also unbalanced at the time, but in different ways. I suffered from heightened fear, but someone else could have been prone to death wishes and such.

To really get at the truth, you have to get multiple perspectives from multiple people. The real truth will usually be something in between the opposing perspectives.

This case is no different.

Lollapalooza II

Posted on

Be The Blessing

This was originally written after the 2013 Boston Marathon Bombings. Many tragic events have happened since then, most notably the COVID-19 pandemic and its lockdowns, the resulting economic calamity and now race riots in cities across America after the death of George Floyd, a black man who died after being pinned down by a white officer. Now more than ever, we must put aside hate and be a force for good in the lives of our friends, family and neighbors. In other words, be the blessing.

***

I get frequent messages from readers. One was from someone tormented by current events — be it the government spying on citizens or any number of potential calamities.  She asked how to make it stop.

I didn’t have an answer. I have no psychiatric degree — only my personal experiences.

Mood music:

The reader’s message said, in part:

I deal with scrupulosity, ruminations over heaven and hell, conspiracy theories and intrusive thoughts. It’s gotten to the point where it’s become impossible to function when I read a new headline about what the government is doing to us. I get depressed and I get obsessed. I see my intense fear and read things about the government tracking us, and suddenly I regret all the research I did about conspiracies over many years. I don’t know if I even believe it all, but I somehow feel like the more I know, the more I can somehow save my family.

I don’t know what to do about current events. I don’t know how to save my family from government tracking (even though we’re not doing anything illegal or anything that would be of concern), yet I feel like my OCD is making me out to be this inadvertent target due to the fact that I’m always obsessively searching through conspiracy websites attempting to find “answers.” How did this stop? How do you deal with this?

I can relate to her fear of current events. It’s something that used to paralyze me on a regular basis. I felt the need to give an answer broader than the fear of current events part, because to me that’s merely a symptom of the bigger problem people like us must confront. And so I mentioned how, for me, the biggest helpers have involved:

I noted how, even after adding these tools, I still struggle. Some days I forget to use some or all of those tools for a variety of reasons. Using them actually takes more energy than I have some days. And if something really big dominates the news, it will still have an impact on me. The Boston Marathon bombings come to mind.

After I hit “send,” I remembered something a friend wrote not long before she died of cancer. Renee Pelletier Costa wrote about her despair over leaving all the people in her life and how her pastor replied simply, “Then don’t leave.” That statement made her realize that in a world she couldn’t control, she could still use whatever time was left to be a blessing to others.

That was a huge point for me as an OCD sufferer. I can’t control most of what goes on in the world around me, but I can still carry on each day in ways that make the difference to family, friends and colleagues. It can be as simple as saying good morning to someone and holding a door open for them. You can talk to them about their struggles — or better yet, just listen to them. Bring them a coffee. Make them laugh. Any of these things go a long way when someone’s having a shitty day.

The NSA will keep spying on us. Stocks will rise and fall. But none of that can keep me from being there for my family, from playing guitar and doing other things that make life worth living.

To the best of my ability, I choose to be the blessing. What happens from there isn’t up to me.

Boston Marathon Explosion

Posted on

Good Luck, Gretchen 2.0

A quick note that long-time friend and former boss Gretchen Putnam is leaving The Eagle-Tribune to pursue new creative opportunities.

The news organization won a Pulitzer and many other awards under her leadership as metro editor and managing editor, and her dedication to the communities she covers has been inspiring to watch.

Though I left the paper nearly a decade ago, I have memories of working with Gretchen that I’m forever grateful for. I was a mental mess back then and I know it often made her life difficult. But she continued to be a steady, reliable friend who always made sure I put my family and health above all else.

Anyone who has worked for her will tell you she’s a nurturing soul, and a lot of us are better for it.

Good luck in your new adventures. I expect big things from Gretchen 2.0.

GretchenPutnam

 

Posted on

Lollapalooza 1992: Case Study In Terror

The other day I came across some YouTube videos of the Jim Rose Circus, a freak-show act popular among my crowd in the early 1990s. I first saw them live at Lollapalooza 1992, and watching the videos reminded me of what a terrified 20-something I was back then.

Mood music:

I was excited to go because the band line-up included the biggest rock acts of the day, including Soundgarden, Pearl Jam, The Red Hot Chili Peppers and an industrial metal band I was into at the time: Ministry.

I enjoyed the Jim Rose act and was chilled and relaxed through Soundgarden and Pearl Jam. Then Ministry came on stage and flipped the switch on the intense anxiety and fear I struggled with back then. They launched into a cover of Black Sabbath‘s “Supernaut” and all hell broke loose behind me. The setting was an outdoor venue known back then as Great Woods, and behind the seating area was a grass-covered hill. The sun of the day started to dim and I thought a thunderstorm was afoot. Then I looked behind me and saw that the dimmed light was the sun being blocked by a cloud of dirt. The crowd in the back had begun tearing up large pieces of sod and tossing it in the air, creating a soil sunscreen.

At first I thought it was funny. It was all part of the metal spirit. Then the thick chunks of sod started making its way toward the seating area and stage. A piece slammed me in the side of the head and that’s when the terror switch in my soul turned on.

The crowd in the back didn’t stop with the sod. They started tearing the rear fence from the ground and piled the wood high, setting it aflame. I was convinced there would be a riot and stage rush that would crush us all. I fled to the men’s room and stayed there a long time. The group with me included Sean Marley, who was older than me and often played the role of big brother.

Sean was fearless, and though the depression that eventually ended him didn’t come on for another couple years, I’m pretty sure he already had something of a death wish at that point. He was a lot less patient with me. But he never gave up on me. He put up with my fear a lot and was always working to break me of the fear. It took many years after his death for the fear to be broken, but I’m always going to be grateful to him for trying.

We stayed long enough to see half of the Red Hot Chili Pepper’s headlining performance, but left before it was over. My certainty that we were all going to get killed or arrested had gotten so bad that I was twitching by that point, and my friends saw the writing on the wall. No one ever complained, though. Not to my face, anyway.

Though I don’t carry the fear anymore and my anxiety is mostly under control, I really can’t say how I’d react if I were at that same show right now. Would I smile and drink in all the chaos and stay until the end? I’m not so sure. I would have scowled at the stupidity of some in the audience, and probably wouldn’t be afraid to say something aloud. I might even yell toward the back that people should stop being idiots.

Most likely is that I’d have left early anyway — not for fear of physical danger, but because I’m simply too old to put up with that kind of behavior.

lollapalooza4