The Beauty of a Broken Body

At the breakfast table yesterday, Sean said, “Dad has many good qualities. None have anything to do with his body.”

I had good laugh over that and was amused enough to share it on Twitter and Facebook. Which brought this thoughtful response from a friend: “Little does he know what you’ve been through with your body. When he realizes, he’ll know that that’s your best quality!”

Mood music:

Sean knows, of course. He’s seen for himself what a crippled back did to me before I got that fixed, and he’s heard all about the Crohn’s Disease I had as a kid. He has seen the pictures of me bloated on Prednisone and the fourth-grade report card with 43 absences on it, 26 of them during the final semester that year. Whether he truly comprehends it all is another thing.

His witticism, though, was meant to get a reaction. Nothing more, nothing less. He knows I enjoy a good zinger, especially from him and his brother.

But there is a bigger lesson for the kids: bodies fall apart for different reasons and in the majority of cases, it need not prevent a person from living life to the full.

I have friends who test and break their limits with weight lifting, martial arts and the like. I admire them immensely but will never duplicate their achievements because I still have a spine that limits movement. I’ll also never be as thin or muscular as they are, for the same reason. The childhood intake of Prednisone, meanwhile, left me with permanently bad vision and more body hair than I’d like.

Despite my body’s imperfections, I still push myself in a variety of ways. I cut flour and sugar from my diet years ago. I’m a regular walker and always have been. I push myself hard on the career front and have been rewarded many times over. I’ve pushed myself to the outer limits in unraveling my mental disorders and getting them treated.

My body may not be what most consider attractive, but I’m proud of it. Because despite all the blows over the years, it keeps on working.

Does that excuse me from striving to be in better shape? Of course not. There’s still plenty I can do to control weight and muscle mass, and there are no good excuses for avoiding that work.

My bodybuilding friends overcame plenty of their own physical limitations to get to where they are. I admire them for that. They remind me of the older brother I lost in 1984. He didn’t get to live a long life, but despite the asthma that eventually killed him, he lifted weights religiously and was full of muscle. It was his way of not taking an ailment lying down.

I learned a lot from that, and I think Sean and Duncan are learning a lot from my broken-body adventures today.

Strong man with unhealthy body

Adventures in Change

Yesterday we dropped our kids off at a new school for the first time. In June, I left a job I was at for five years and started a new one. We didn’t begin 2013 with these changes planned, but here we are.

Mood music:

Going to Akamai was a pretty easy move for me. I joined a team in which I’ve known the boss and several staffers for years. It was also a move that kept me in the security community. But I didn’t plan on a job change in January. Opportunities simply materialized.

The kids changing schools was a more difficult switch. The decision was hard for Erin and me to make, and we had the children’s emotional response to consider.

For  a family that has typically resisted change, it’s quite an adventure.

The kids seemed OK as we left the schoolyard and they entered their new building. But you could tell they were also somewhat dazed, unsure of their surroundings and all those new classmates. Erin and I lingered. We wanted to get back to work, but we wanted to make sure they were all right. This weekend they had two parties with classmates from the old school, which I’m sure made this harder.

I keep telling them it’s going to be great, because they’ll have all their Haverhill friends and will make new friends from different towns on top of that. I told them about my going to a regional high school and being scared out of my wits. But while I was something of an outcast in school, I still managed to make close friends from different, diverse cities, and that expanded my horizons.

The kids weren’t particularly receptive to that. They’ll eventually see what I mean. But not today.

It’s a funny thing about life: All that’s familiar can shift in an instant. But I long ago accepted that change is the law of life. Resist it and drown in the wake.

Sooner or later, our boys will accept that, too.

Change Ahead Road Sign

On My Sixth Birthday, the Ramones Changed Everything

I’m tickled to discover that my birthday is a special day to The Ramones, too. Turns out, yesterday was also the 37th anniversary of the band’s debut album. They were always an important band for me, especially after I learned that Joey Ramone was a fellow OCD sufferer.

Mood music:

http://www.youtube.com/watch?v=O7PEzQQYWag

I owned multiple Ramones albums on vinyl, and wore them out from playing them so much. A favorite was Halfway to Sanity. Back then I knew nothing about my own OCD, let alone Joey Ramone’s. I just loved that the songs were loud and simple and that the band members were ugly like me. But looking back, they were the ideal personification of OCD. Their songs revolved around simple chord progressions with a lot of repetition. Repetition fits the OCD mind like a glove.

I skipped my senior prom and attempted to get into a Ramones show at The Channel in Boston. I didn’t have a date anyhow and getting kicked in the stomach by punk rock was more appealing than dancing to Bon Jovi.

Also noteworthy: There was a time before Erin and I started dating that she was driving behind me on the way home from Salem State one day, and I noted she was bopping her head up and down and back and forth. It turns out she was listening to The Ramones. I believe it was “All the Hits and More” she had in the tape deck. The strawberry-blond hair flailing around was the most beautiful thing I’d ever seen.

When I was researching famous people who shared my mental disorder and I saw Joey on the list, his status as one of my all-time heroes was cemented. That someone with OCD could stand in front of a raging crowd of punk rockers every night floored me. By the time he died in 2001, he had amassed a body of work that will inspire people forever.

When someone thinks they’re doomed to a less-than-wonderful life because they have a mental illness or physical defect, just look at what Joey Ramone did. Then try to tell me you can’t soar above the things that seem like limitations.

Now if you’ll excuse me, I’m going to go listen to the first Ramones album — repeatedly, obsessively and unapologetically.

The Ramones

Wherein I Get Another Year Older

On this, my 43rd birthday, I can’t help but remember what Indiana Jones said in Raiders of the Lost Ark. Grousing about a body beat to hell from a life of adventure, he noted that it’s not the age but the mileage.

Mood music:

http://youtu.be/lWkZqE3oaDs

I have to admit, my mileage shows. My beard is getting grayer. My knees aren’t as durable as they used to be. I’ve got sleep apnea and bad vision. But then all these things existed on my 42nd birthday. And my 40th and 38th. Which means I’m not at all bothered by it.

I’ve always had trouble understanding people who get depressed about their birthdays. What’s not to love about not being dead; of making it another year?

I’m always mindful of the fact that I had severe illness as a kid. That I haven’t yet developed colon cancer after all the damage Crohn’s Disease did to me in my youth is pretty amazing. I’ve seen a sibling and some good friends die young, and the fact that I’m so many years older than they were at their deaths makes me realize how lucky I am.

And hell, I’m still a kid in many respects. I love new toys, especially technological gadgetry and musical instruments. In the past year, I’ve collected guitars, amps and effects pedals with the same enthusiasm I had as a boy collecting Star Wars action figures and ships. I still play my music at maximum volume. I still love a good party, even if I no longer drink.

I’ve also found that being in my 40s is much better than being in my 20s and 30s. A lot of those years were full of suckage: jobs that chained me to desks for 80 hours a week, a body much heavier than it is now, OCD, and fear, anxiety, and depression that kept me in hiding much of the time.

At 43, I have a career that I love. I have the best wife on Earth and two boys that teach me something new every day. I have many, many friends who have helped me along in more ways than they’ll ever know.

This aging thing ain’t half bad.

Another year of graying whiskers, sore knees and hectic business travel? Bring it on.

Smoker 100th Year

Suicide in the Blood

A friend sent me a fascinating article yesterday about medical advancements in which a person’s severe depression and suicide could possibly be predetermined by biomarkers in their blood.

Mood music:

The article in Nature outlines how six biomarkers in blood can conceivably identify people at risk of suicide. Indiana University psychiatrist Alexander Niculescu and six of his colleagues published their findings in Molecular Psychiatry.

They identified nine men with bipolar disorder who are part of a larger, separate study. Between testing visits, the men had gone from no suicidal thoughts to strong suicidal thoughts.

These men’s blood samples were compared to blood samples from nine men who had committed suicide. According to the article, “This enabled [the scientists] to narrow their list of candidate biomarkers from 41 to 13. After subjecting the biomarkers to more rigorous statistical tests, Niculescu’s team was left with six which they [were] reasonably confident were indicative of suicide risk.”

The researchers have a lot of work left before they can prove beyond reasonable doubt that suicidal tendencies are detectable through blood tests. Still, I’m for any medical research that might speed the process of identifying people before they’re too far along in their suffering to be helped.

I don’t think it’ll ever replace the hard work a person now goes through to achieve mental wellness. Imbalances in blood and brain chemistry are problems that must be addressed. But it’s just as important for someone to identify the environmental and historical triggers that put them at risk.

My own challenges with depression have been shaped by personal history. I went through stuff as a child and young adult that will forever color how my mind perceives and reacts to life’s everyday trials. To get to where I’m at today, I had to talk to therapists about what I was feeling and untangle the web of memories that left me prone to out-of-control OCD and long stretches of melancholy.

Changes in diet and medication were also required.

To be fair, despite vicious bouts of depression, I don’t recall ever being suicidal. Whether my blood had the warning signs is anyone’s guess. It could be that I was lucky enough to get help before my problems became suicidal material. Or it could be that suicide was never something I was at risk for. Between my depression and watching more than one friend’s life end by suicide, it is a subject I’ve become obsessive about.

Maybe a blood test could have found signs of trouble in my friends and me earlier on. I’m not sure we’d have escaped the hardships that developed, but maybe we could have gotten treated sooner. Either way, it doesn’t matter now for us. They’re gone and I’ve found ways to manage my mental health through other means.

But if it makes a difference for people in the future, then the work of these researchers is something to celebrate.

Blood Viscosity

Years Wasted, by Things Large and Small

When writing about depression, it’s easy to go into so much depth about the myriad causes and effects that the bigger picture is lost on some people.

Mood music:

http://youtu.be/fvVFg1wLtBs

My last two posts about a sleep apnea diagnosis and the its probable effects on my depression over the years led one friend on Twitter to say this:

I think there might be confusion about cause and effect here. Also, depression is not just a mood you experience some times.

I bristled at that for a moment, because I’ve been pretty open about my long battles with depression and, to my recollection, have never suggested it was a little mood I sometimes find myself in. We went back and forth a bit more on Twitter and reached a consensus of sorts. He thanked me for clarifying, adding, “Too often I see people treating depression like a paper cut.”

It’s easy to feel that way when someone starts picking at the various causes of depression from around the edges. In the case of sleep apnea, the lack of proper sleep isn’t the primary trigger for my bouts of melancholy. For me, a variety of triggers feed the larger monster.

But over time I’ve found it important to stop and ponder every little piece of the puzzle. The sleep apnea is just one more discovery, and the treatment could be a new arrow in a quill that’s grown fatter over time.

Along the way, I believe I’m improving myself and making the depressive episodes smaller as I go. I’m getting a constant education and I try to apply those lessons to my daily life.

I’m not going to stop doing so, even if people occasionally suggest I’m letting small details get in the way of the bigger picture. I know the big picture all too well.

The depression I’ve experienced amounts to wasted years, long periods where I hid indoors, lying in front of the TV, eager to escape the real world. I missed out on a lot of quality living in those years.

Thanks to the right mix of medication, years of intense therapy and other lifestyle changes, I’m a different man today. I don’t fear things like I used to, and I’ve racked up many priceless experiences in the last half-decade as a result.

I still suffer from periods of depression, especially in winter. But my time no longer goes to waste.

If picking around the edges keeps me from sliding backwards, so be it.

Depression

Depression Causes: Add Sleep to the List?

Yesterday’s post on my sleep apnea diagnosis got a lot of response. Two big lessons from all the feedback: Far more people have sleep apnea than I knew, and those who have since been treated recall the huge mental distress caused by inadequate sleep.

Mood music:

Said one friend: “BIll, I too have sleep apnea. It’s a vicious, horrible physical problem. You don’t even realize how badly the lack of REM and deep sleep is changing your behavior and your emotional stability. Also impacts you physiologically in many and varied ways, including poor metabolism and blood pressure.”

I’ve attributed a lot of things to my occasional bouts of depression: past battles with addictive behavior, the OCD when I let it run hot for too long, personal experiences with illness and death and lack of daylight in the winter. I never really considered the sleep angle, though I suppose I’ve known about that all along.

Getting to the bottom of my sleep patterns started as an effort to deal with snoring and was more for Erin’s sanity than mine. (She’s a light sleeper, which means my snoring really messes with her own sleep quality.) But the benefits of this experience may turn out to be much deeper.

I’ve also gotten a lot of feedback on the usefulness of CPAP machines. A couple of readers reported that it was of little help. Many more readers said the device changed their lives.

Said another friend: “The first night I slept with the CPAP machine was the best night of sleep I’d had in two decades — no exaggeration.”

I’ve been told the success or failure of this depends on how accurately the sleep doctors fit me for the mask. You can bet I’ll keep that in mind when I have it done.

I thank you all for the responses. I’ll keep you posted on how the machine works.

CPAP Masks

Pushing It to 11 with a Better Night’s Sleep

According to the results of my sleep study, I have something called sleep apnea. I stop breathing for a few seconds or a little over a minute and then snore ferociously as the breathing kicks back in. I’m told mine is moderate to severe.

Scary, you say? Not really.

Mood music:

I know a few people with this condition, including my father. It afflicts people from all walks of life: the fat, the thin, the short, the tall, the young and the old. In my case, the root cause is a nose and sinus cavity full of bad plumbing. My snout is almost always clogged, and if I’m trying to breath through the nose everything stops until the mouth breathing takes over.

The doctor showed me a computer screen full of squiggly lines that measured brainwave activity, blood oxygen levels, REM vs. light sleep, etc. Throughout the night the study was done, the squiggly lines flattened out. Most of the time it was for 8–15 seconds. In a few cases, it lasted more than a minute. Wherever the breathing flatlined, another column of lines showed my blood oxygen levels dipping below the preferred level.

It explains a lot.

That it instigates my snoring is obvious. But I’ve always had a tendency to get sleepy in the middle of the day, and I admit to occasionally falling asleep while staring at my laptop. It also explains why I’m usually out cold within minutes of lying down and opening whatever book I’m reading. I’m never adequately rested, so my body sneaks in whatever rest it can throughout the day.

By extension, it’s almost definitely making any depression I get along the way worse than it would otherwise be. I know I had a shitty night’s sleep Saturday, and I spent much of yesterday cranky as a result.

I’ve had two surgeries in recent years to deal with the snoring. One was to correct a deviated septum (I’m convinced the procedure only made it worse). The other was to snip off the uvula. Both times they also installed pillar implants in the soft palate to prop things up. Being overweight is often cited as a root cause, and there’s surely some of that in my case. But I’ve also lost a ton of weight over time, especially since kicking flour and sugar.

The solution to all this?

I’m going to endeavor to drop another 10 or 15 pounds because that can’t hurt. But the bigger solution is that I’m getting a machine to help keep the airways open at night. The continuous positive airway pressure (CPAP) machine uses mild air pressure to keep an airway open. The devices are smaller than they used to be. Mine will be about the size of a tissue box.

I’m excited to see what a full night of uninterrupted sleep is like. Despite the breathing trouble, I’ve managed to function at a vigorous level. With better sleep, I’m hoping to push it to 11.

Frustrated CPAP Patient

Learning to Live with Difficult Colleagues

You see it in every office: People who become enemies because they can’t reconcile their conflicting agendas. I’ve allowed myself to get sucked into it more than once in the last two decades. But I eventually found another approach.

Mood music:

http://youtu.be/56vLS_KPp9I

I used to let difficult colleagues get to me. If someone criticized my work or blocked my efforts, a spiral into long bouts of rage and depression came on, which usually gave way to illness. I clashed with one boss so badly that it drove me to the edge of a nervous breakdown. He may have been an asshole, but I lacked the tools to deal with someone like him.

Along the way, I’ve worked with other people who loathed co-workers. One such person would spend the first hour of the day detailing how this person and that person were out to destroy what our team was building. As she saw it, they were enemies, hell-bent on invading our little island and taking over with brutal efficiency. I never saw it that way, but it became increasingly difficult to keep the poison vibes from infecting me.

When your success or failure at work hinges on how well you meet the various goals bosses have set out for you, it’s easy to become that person. But over time, I’ve come to see that the people who seem to be against you aren’t usually acting out of malice. They’ve been handed their own list of goals and are just as worried about what will happen if they fail. They too have families to feed, college tuition to afford and debts to pay off. Some are also burdened with their own illnesses — physical, mental or both.

One eye-opener was in the last job, where one boss — a laid-back, friendly, kind soul — made an observation about difficult people that went something like this: “It’s all good. People with issues are always more interesting to me.” To him, dealing with difficult people was a worthy challenge, which might explain his decision to work with me. If you could work past the difficulties and turn adversaries into friends, you were onto something excellent.

With those words, I found my own approach changing. Instead of giving people with conflicting agendas the stink eye, I tried getting to know them. I sought out our common interests and used those to break the ice. Then we could get past our differences and find ways to compromise.

I’ve also worked hard to see the other person’s side of things: who their boss is, which goals they’re being judged by and where their goals can intersect with mine.

We’re all human. We all carry stress. No matter how much we love what we do, there’s still the occasional, nagging feeling that we might not succeed.

That uncertainty is a simple fact of life. Better to roll with it than drown in its depths.

Milton Holds

Treat Red Bull Like Alcohol and Cigarettes

I’m an avid consumer of sugar-free Red Bull and have been known to down more than one can a day. I see it as one of the only vices I have left after quitting booze, flour and sugar a few years back. So when I saw online protests about the government looking to regulate the sale of such energy drinks, I balked.

Mood music:

I was originally going to write a post blasting government for trying to control us yet again. Then I read about ER visits skyrocketing and children dying. According to ABC News:

Fourteen-year-old Anais Fournier of Hagerstown died in December of 2011 after drinking two 24-ounce Monster Energy drinks. Her family is suing that company. Fournier had a heart condition — her family’s attorney, Kevin Goldberg, tells ABC-2 News one problem is that many children are too young to have ever gotten that diagnosis.  And consuming highly-caffeinated beverages is like pouring gasoline on a fire they don’t even know is there. The US Department of Health and Human Services found that in 2007, there were about 10,000 emergency room visits related to energy drinks.  By 2010 that number doubled to 20,000.

As a confessed addict, I know it’s ultimately my choice whether to consume the stuff that drives me to madness. My addictive behavior has historically centered around binge eating. I started using wine as a crutch when I decided to bring the binge eating to heel. More than a year after quitting booze, I started smoking again to keep from taking a drink. And so the vicious cycle goes.

Today I cling to my caffeine and e-cigs. Not what one would call a solution, but I consider these the lesser evils of addiction.

The government can regulate food and drink all it wants. If you’re an addict hell-bent on getting your fix, you will find a way. That belief has driven much of what I’ve written about past efforts at regulation. But I’ve come to realize the bit about energy drinks is different.

Red Bull, Monster, Rock Star and other drinks are sold out in the open in any convenience store, right next to the Gatorade and Pepsi. There’s no age restriction on making the purchase that I know of. Energy drinks come in cans with cool, sleek artwork and color schemes, which attracts kids as a red cloth would attract a raging bull. That’s how you get deaths like that of Anais Fournier.

The government would be going way overboard if it decided to ban these drinks outright. But there are simple measures I think would be fair. For example:

  • Put the energy drinks in the same refrigerated cases and sections as the alcoholic products.
  • Sell them behind the counter, just like the tobacco products.

Those moves wouldn’t cut off my access to Red Bull. But it would control access to children, and I’m fine with that.

Red Bull