Your Excuse Is Invalid

Like everyone else, I find it hard to motivate myself some days. Then I read tales and see photos of people doing big things despite big disadvantages. My own problems then seem microscopic, and I can move on.

Mood music:

[spotify:track:3G6Pmvb6lsEu7dFkW0bpQc]

Today I’d like to thank three people for giving me a much-needed kick in the ass.  Whenever I’m feeling overwhelmed and sorry for myself, I can look to them and see my excuses for personal adversity are invalid.

My aunt Robin, who is fighting breast cancer with grace and good humor:

Aunt Robin

Amandita Sullivan, one of my Facebook connections. I don’t know her personally, but I connected with her because she uses the social network to inspire people daily with her story of recovery after getting hit by two different cars inside of a week. She also devotes a lot of space to others who have bounced back from adversity:

Amandita Sullivan

And this guy, a friend of Amandita’s who lost two legs but not his lust for life:

Climbing mountains

Rock on, folks.

Beyond Boing Boing: Xeni Jardin Inspires Me

I’m a long-time reader of the Boing Boing site and have always been particularly fond of the work of editor Xeni Jardin. Her openness in talking about her breast cancer makes me appreciate her all the more.

Jardin’s greatest strength as a writer has always been her ability to focus on the human side of technology, and she was doing just that in early December when she live tweeted her first mammogram. She poked fun at a procedure that scares the hell out of most women who have one for the first time, saying, among other things:

Comparing her experience to Katie Couric’s TV-documented colonoscopy some years back, she said:

At the end of this string of tweets came this:

She filled in the blanks with a column later on, in which she described having an ultrasound:

Dr. Kristi Funk is her name. How can anything go bad when the doctor’s name is Funk, and there are so many funny things to tweet? She told me to lie down, put some goop on my chest, and waved a wand through the goop. The waves appeared on a screen. It looked like NASA video, something the Mars rovers might transmit home to a JPL engineer searching for distant water.

She showed me a crater in the waves, a deep one, with rough edges and a rocky ridge along the northern rim. Calcification. Badly-defined boundaries. Not the lake we’d hoped to find.

“The first thing you’re going to learn about working with me is that I’m a straight shooter,” Dr. Funk said. Her voice was steady and reassuring.

“That’s how you know you can trust me. I’m going to tell you everything, and I’m going to tell it to you like it is.”

I forget the rest of what she said, but it added up to this: the crater was cancer.

As the words sank in, the Mars rover crawled over another steep ridge, out of the crater and into a valley, and found one of my lymph nodes, larger and darker than the others. A rocky prominence. A sentinel node. No water there, just fast-dividing cells that kill.

I believe that we are looking at breast cancer, and that it has spread to one of your lymph nodes, she said. 

Since then, Jardin has taken her readers through every step of her treatment experiences. She started a Twitter exchange the other day about how to wake up veins that have collapsed from too many IV needles. Having suffered through the collapsed veins as a kid when Crohn’s Disease made regular IV drips necessary, I knew how valuable this kind of exchange was.

She has tweeted about the sickening effects of chemo and not being able to taste her coffee in the morning.

She’s done it all with a lighthearted demeanor that makes the suffering accessible and less scary. For us, at least.

I’ve always had enormous respect for those who share the experience of a medical procedure many consider embarrassing. Many women are reluctant to get their boobs flattened into pancakes, just as I’ve never enjoyed the frequent colonoscopies I have to have because the childhood Chrohn’s Disease makes me a high risk for colon cancer in middle age.

But when someone shares the experience, it becomes less embarrassing and, more importantly, less mysterious and scary.

That’s why I’ve always respected Couric. Her on-air colonoscopy happened before Facebook and Twitter, where people share so much that nothing is surprising anymore. She did it to raise awareness after colon cancer killed her husband.

It made the procedure a lot less scary for people.

Jardin has done an admirable job making breast cancer treatment less scary. I think that will inspire a lot of women to get early mammograms that may well save some lives.

This post is to thank her and encourage my own readers to tweet her some words of support as she continues the fight. Her Twitter handle is @xenijardin. Thanks.

Anti-Authoritarianism As A Mental Illness

A friend sent me an interesting article by psychologist Bruce E. Levine that poses the question: Would we drug up Albert Einstein today for displaying traits outside the norms of an obedient society?

Mood music:

http://youtu.be/zmw9dd9UgRQ

Let’s see what Levine says, then I’ll weigh in…

In my career as a psychologist, I have talked with hundreds of people previously diagnosed by other professionals with oppositional defiant disorder, attention deficit hyperactive disorder, anxiety disorder and other psychiatric illnesses, and I am struck by 1) how many of those diagnosed are essentially anti-authoritarians; and 2) how those professionals who have diagnosed them are not.  

Anti-authoritarians question whether an authority is a legitimate one before taking that authority seriously. Evaluating the legitimacy of authorities includes assessing whether or not authorities actually know what they are talking about, are honest, and care about those people who are respecting their authority. And when anti-authoritarians assess an authority to be illegitimate, they challenge and resist that authority—sometimes aggressively and sometimes passive-aggressively, sometimes wisely and sometimes not.  

Some activists lament how few anti-authoritarians there appear to be in the United States. One reason could be that many natural anti-authoritarians are now psychopathologized and medicated before they achieve political consciousness of society’s most oppressive authorities.  

Gaining acceptance into graduate school or medical school and achieving a PhD or MD and becoming a psychologist or psychiatrist means jumping through many hoops, all of which require much behavioral and attentional compliance with authorities, even those authorities one lacks respect for. The selection and socialization of mental health professionals tends to breed out many anti-authoritarians. Degrees and credentials are primarily badges of compliance. Those with extended schooling have lived for many years in a world where one routinely conforms to the demands of authorities. Thus for many MDs and PhDs, people different from them who reject this attentional and behavioral compliance appear to be from another world—a diagnosable one. 

I have found that most psychologists, psychiatrists and other mental health professionals are not only extraordinarily compliant with authorities but also unaware of the magnitude of their obedience. And it also has become clear to me that the anti-authoritarianism of their patients creates enormous anxiety for these professionals, and their anxiety fuels diagnoses and treatments.  

A 2009 Psychiatric Times article titled “ADHD & ODD: Confronting the Challenges of Disruptive Behavior” reports that “disruptive disorders,” which include attention deficit hyperactivity disorder (ADHD) and opposition defiant disorder (ODD), are the most common mental health problem of children and teenagers. ADHD is defined by poor attention and distractibility, poor self-control and impulsivity, and hyperactivity. ODD is defined as a “a pattern of negativistic, hostile, and defiant behavior without the more serious violations of the basic rights of others that are seen in conduct disorder”; and ODD symptoms include “often actively defies or refuses to comply with adult requests or rules” and “often argues with adults.” 

Psychologist Russell Barkley, one of mainstream mental health’s leading authorities on ADHD, says that those afflicted with ADHD have deficits in what he calls “rule-governed behavior,” as they are less responsive to rules of established authorities and less sensitive to positive or negative consequences. ODD young people, according to mainstream mental health authorities, also have these so-called deficits in rule-governed behavior, and so it is extremely common for young people to have a “dual diagnosis” of AHDH and ODD. 

Do we really want to diagnose and medicate everyone with “deficits in rule-governed behavior”? 

Albert Einstein, as a youth, would have likely received an ADHD diagnosis, and maybe an ODD one as well. Albert didn’t pay attention to his teachers, failed his college entrance examinations twice, and had difficulty holding jobs. However, Einstein biographer Ronald Clark (Einstein: The Life and Times) asserts that Albert’s problems did not stem from attention deficits but rather from his hatred of authoritarian, Prussian discipline in his schools. Einstein said, “The teachers in the elementary school appeared to me like sergeants and in the Gymnasium the teachers were like lieutenants.” At age 13, Einstein read Kant’s difficult Critique of Pure Reason—because he was interested in it. Clark also tells us Einstein refused to prepare himself for his college admissions as a rebellion against his father’s “unbearable” path of a “practical profession.” After he did enter college, one professor told Einstein, “You have one fault; one can’t tell you anything.” The very characteristics of Einstein that upset authorities so much were exactly the ones that allowed him to excel.

My thoughts:

Einstein probably would have been deemed an ADHD-OCD case and given medication. I’m not convinced that the medication would have obliterated his intellect  or altered his work. But who knows.

I only know that as someone with OCD and ADHD, I take medication that allows me to move along without getting brain locked. It doesn’t make me smarter or dumber. It doesn’t numb me to discomforting situations. I still feel and think everything. The worry and anxiety simply doesn’t incapacitate me like it used to.

Are psychologists, psychiatrists and other mental health professionals too quick to prescribe medication for the sake of making sufferers more obedient and less troublesome in their surroundings? Probably. I think that’s especially problematic with children.

It’s hard to paint every situation with the same brush, though. There are bad therapists and excellent therapists.

Some get just the right treatment. Others get disastrous treatment.

I’m just glad Einstein got to live his life on his terms.

The Most Important Book Ever Written About Sharon Tate And The Manson Murders

I’m reading a book called “Restless Souls: The Sharon Tate Family’s Account of Stardom, the Manson Murders, and a Crusade for Justice,” written by Tate family friend Alisa Statman and Brie Tate, niece of Sharon Tate. It may well be the most important book written on the Manson case.

Mood music:

The simple reason is that it captures a family’s grief and struggle to move on — something all our families have dealt with in various forms.

Restless Souls: The Sharon Tate Family's Account of Stardom, the Manson Murders, and a Crusade for JusticeI’ve written a lot here about my interest in the Manson case. This past November, I drove to the Tate and LaBianca murder sites during a trip to L.A. The story tapped into my fearful side at a young age, when Channel 56 played the two-part “Helter Skelter” movie every year. But until I downloaded this book onto my Kindle, I never truly appreciated what the Tate family has been through all these years.

I knew Sharon’s mother, Doris Tate, was a tireless victim’s rights advocate up to her death in 1992 and that her daughter Patti (Brie Tate’s mother) carried the torch until her death from cancer in 2000.

The Tate family has spent the last 42-plus years living with its tragic ties to criminal history. The book is a collection of narratives written by Doris, Patti, and P.J. Tate (Sharon’s father).

P.J. writes about having to go to the Cielo Drive house shortly after the murders to clean up all the blood and collect his daughter’s things. Patti writes about her struggle to hide from the prying world and live in quiet, only to have her family history come back to haunt her every time.

You see how Doris emerged after a decade of mourning to become a tireless fighter for victim’s rights, prison reforms and keeping her daughter’s killers in prison. You see P.J. and Patti getting upset with Doris again and again for keeping the family in the spotlight through her work. The wreckage of their lives includes all the usual tormentors: addiction, gut-shredding guilt, fear and anxiety. You see them learning to live again and finding purpose.

It’s the ultimate story of battling adversity.

I wish this book had come out before my L.A. trip, because I would have looked at those murder sites with a different set of eyes.

The Manson case has been a source of obsession for many, many people over the years. There’s the natural curiosity about what drives human beings to kill. There’s the horror and blood aspect that sucks people in. But what often gets lost is what kind of people the victims were, and what happens to those they unwillingly leave behind.

This book is all about the latter. That’s why I think it’s so important.

I think Brie Tate did her family proud with this work. I look forward to seeing what she does in the future.

THE OCD DIARIES, Two Years Later

Two years ago today, in a moment of Christmas-induced depression, I started this blog. I meant for it to be a place where I could go and spill out the insanity in my head so I could carry on with life.

In short order, it snowballed into much more than that.

Mood music:

http://youtu.be/IKpEoRlcHfA

About a year into my recovery from serious mental illness and addiction — the most uncool, unglamorous addiction at that — I started thinking about sharing where I’ve been. My reasoning was simple: I’d listened to a lot of people toss around the OCD acronym to describe everything from being a type A personality to just being stressed. I also saw a lot of people who were traveling the road I’d been down and were hiding their true nature from the world for fear of a backlash at work and in social circles.

At some point, that bullshit became unacceptable to me.

I started getting sick of hiding. I decided the only way to beat my demons at their sick little game was to push them out into the light, so everyone could see how ugly they were and how bad they smelled. That would make them weaker, and me stronger. And so that’s how this started out, as a stigma-busting exercise.

Then, something happened. A lot of you started writing to me about your own struggles and asking questions about how I deal with specific challenges life hurls at me. The readership has steadily increased.

Truth be told, life with THE OCD DIARIES hasn’t been what I’d call pure bliss. There are many mornings where I’d rather be doing other things, but the blog calls to me. A new thought pops into my head and has to come out. It can also be tough on my wife, because sometimes she only learns about what’s going on in my head from what’s in the blog. I don’t mean to do that. It’s just that I often can’t form my thoughts clearly in discussion. I come here to do it, and when I’m done the whole world sees it.

More than once I’ve asked Erin if I should kill this blog. Despite the discomfort it can cause her at times, she always argues against shutting it down. It’s too important to my own recovery process, and others stand to learn from it or at least relate to it.

And so I push forward.

One difference: I run almost ever post I write by her before posting it. I’ve shelved several posts at her recommendation, and it’s probably for the best. Restraint has never been one of my strengths.

This blog has helped me repair relationships that were strained or broken. It has also damaged some friendships. When you write all your feelings down without a filter, you’re inevitably going to make someone angry.

One dear friend suggested I push buttons for a good story and don’t know how to let sleeping dogs lie. She’s right about the sleeping dogs part, but I don’t agree with the first suggestion. I am certainly a button pusher. But I don’t push to generate a good story. I don’t set out to do that, at least.

Life happens and I write about how I feel about it, and how I try to apply the lessons I’ve learned. It’s never my way or the highway. If you read this blog as an instruction manual for life, you’re doing it wrong. What works for me isn’t necessarily going to fit your own needs.

Over time, the subject matter of this blog has broadened. It started out primarily as a blog about OCD and addiction. Then it expanded to include my love of music and my commentary on current events as they relate to our mental state.

I recently rewrote the “about” section of the blog to better explain the whole package. Reiterating it is a pretty good way to end this entry. You can see it here.

Thanks for reading.

"Obsession," by Bill Fennell