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Killed By Fear (Doctor Phobia and the C Word)

The Fredstock 2 benefit concert Erin and I went to Friday night hit me where I live for another reason besides a love of music: The event was also about raising awareness about colorectal cancer. I’m a high-risk case.

Mood music:

I never knew Fred Ciampi, the man the benefit is named for. He passed away this winter from colorectal cancer, and the benefit was also meant to help out his wife, Claudia DeHaven Ciampi-Biddle. (Donations can still be made by writing to Claudia@snowlionyoga.com. Please put Fredstock Donation in the subject.)

When I saw his picture, my first thought was, “Man, he was young.” In fact, he died just shy of his 40th birthday.

The other thing that came to mind was that it could just as easily be me in the obituary. The childhood Crohn’s Disease that reduced my colon to a tube of scar tissue also left me at a much higher risk for colon cancer.

It’s something I’ve had to live with since 1990, when I got a letter from my then-doctor recommending I get regular colonoscopies to monitor for possible colon cancer. As a 20-year-old I balked. You never really worry about cancer at that age. But I had the test anyway.

It was a good thing I did.

They found hundreds of polyps throughout the colon. These weren’t — and aren’t — the type of polyps that they typically worry about. These are more like skin tags. Specifically, they are part of the scar tissue.

The doctor was pretty stern with me. “You can’t wait five years between colonoscopies,” he told me. “This stuff can be dangerous.”

Naturally, I went eight years before the next one, and in those years I did some of the most vicious binge eating of my life. Each year that passed made me more fearful of what was going on inside.

I got the test done in 1999 because of some bleeding. Everything was fine, and I’ve done much better at getting a colonoscopy every other year to keep an eye on things. So far, so good, though I’m about a year overdue for the next one. I better make that call this week.

Perhaps I’m a fatalistic personality, but I won’t be a bit surprised if colon cancer is found in me at some point. I haven’t had a Chrohn’s attack since 1986 and I know my luck could run out sooner or later.

But I don’t really fear it like I used to. I figure I get the test frequently enough that anything they find will be at an early and treatable stage.

If I’ve learned anything from all this, it’s that fear and embarrassment is the deadliest risk of all.

People are too embarrassed to get a colonoscopy because of how the procedure is done. No one has to know about it except their doctor and maybe a couple family members. But they avoid the test anyway because they still find it embarrassing. Then they end up dying of colon cancer a few years later. Not in every case, but in many.

Embarrassment is a powerful thing. It keeps a person from seeing things as they really are and keeps them from facing their demons.

It’s not always bad to be embarrassed. God put the emotion in us for a reason. If we’re a jerk to someone or we get caught doing something unethical, we should feel shame.

But we shouldn’t feel shame over an illness and shouldn’t be embarrassed about getting help, whether it’s for colon trouble or the mental illness and addiction at the heart of this blog.

I’m not saying Fred was like that. Like I said, I never knew him.

But I know a thing or two about fear, shame and embarrassment.

Don’t let those things keep you from letting the professionals help you.

OCD Diaries

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You CAN Revisit Your Past (A Trip to Revere)

Erin had an audio conference to record Thursday morning, so to ensure a quiet house, I put the kids in the car and went to Revere Beach, the scene of my tumultuous, painful, angry yet beautiful upbringing.

I’ve written a lot about Revere in this blog. How could I avoid it? But I’ve been short on photos to show you. I fixed that problem with this latest journey back in time. Sean and Duncan had a field day picking up shells and jumping in the water — things I took for granted at their age.

The most striking thing about visiting my old home is that as a whole, Revere Beach is a far more beautiful place than I remember growing up. Part of it is because there was a massive renovation of the beachfront in the 1990s. Pavilion roofs ripped off in the Blizzard of 1978 were replaced, sidewalks were extended to the entire length of the beach and, most importantly, the Deer island sewage treatment plant has cleaned up the ocean considerably.

Here’s the rocks behind Carey Circle, just footsteps from my front door. I used to hide here during moments of anger and depression, chain smoking Marlboro Reds:

The house on the right is where Sean Marley grew up. My house was two doors down. During my teenage years, I spent more time in the Marley house than I did in my own. The house on the left is where Sean moved in after he and Joy got married. It’s also the house where his life ended:

My house, dead center, as seen from Pines Road, across the street:

A lot of dead jelly fish used to wash up on the beach. Here’s the private part of the beach, where the bored among us would blow up the dead fish with firecrackers and, on the fourth of July, the bigger explosives.

 This is the first house after Carey Circle, where the Lynnway becomes Revere Beach Boulevard. Me and my siblings used to hang out in this house in the 1970s and play with the kids who lived there. Their father allegedly had ties to the mob and, sometime in 1978 or 1979, he was gunned down in the kitchen. It was believed to be haunted after that, but I never really took that seriously. The house did creep me out, though:

The trip ended with lunch at Kelley’s.

A good trip, I’d say.

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The Brady Bunch Offended Me

Sherwood Schwartz, creator of “Gilligan’s Island” and “The Brady Bunch,” has died at age 94. Naturally, I’m remembering how I hated “The Brady Bunch” for giving me a fake picture of family life.

Mood music:

I hated “The Brady Bunch” because it made me so angry that my own family was never like that. But then no one’s family is really like that.

I did like the movie adaptations that came out in the 1990s because the films mocked the feel of the original series. You had the family living in the 1990s but acting like they were in the 1970s. Some elements of the family were modernized, though: Alice the housekeeper and Sam the butcher get it on at one point.

When Mike asks Sam what he’s doing there in his robe in the middle of the night, rummaging through the fridge, Sam says, “Oh, just delivering some meat.”

Obviously, Schwartz’s point was to create the perfect picture of family, not because it reflected reality, but because it would be nice if it were reality.

Now that the chip on my shoulder has been filled in by time, experience and hopefully a little wisdom, I see “The Brady Bunch” as a nice idea, however unrealistic. In fact, the escape from reality was a welcome relief to a lot of people whose families were miserable and ugly. A little relief helps you regroup and carry on.

My problem is that I’ve always had a tendency to overthink these things.

I never took issue with “Gilligan’s Island.” As absurd as the show was, I’ve always liked the theme of people with nothing in common getting thrown together — forced to become a new family of sorts in order to survive.

I admit without shame that my favorite episode is the one with the Japanese sub pilot who didn’t realize the war was over; the one who complained that the Chinese stole the idea for water torture from Japan.

Despite how the younger, angrier version of me felt, the older me believes Schwartz did a lot of good for a society that tends to stew in its own, stinking, cynical juices.

Rest in peace. I hope you find the folks in Heaven to be something like the characters you created.


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And The Sea Will Save You

When I wrote a post called “Summers of Love and Hate” last year, the theme was a childhood mixed with joy and rage against the backdrop of Revere Beach.

The memories are still stained with sorrow. But, truth be told, the location of my upbringing is one of the things that saved me.

Mood music:

The sea could be terrifying, especially in the winter. The Blizzard of 1978 is my clearest memory of that. But when calm, it brought be back from the brink every time.

This quote from JFK captures my own feelings about the sea as healer and helper:

I really don’t know why it is that all of us are so committed to the sea, except I think it’s because in addition to the fact that the sea changes, and the light changes, and ships change, it’s because we all came from the sea. And it is an interesting biological fact that all of us have, in our veins the exact same percentage of salt in our blood that exists in the ocean, and, therefore, we have salt in our blood, in our sweat, in our tears. We are tied to the ocean. And when we go back to the sea — whether it is to sail or to watch it — we are going back from whence we came.

I’m thinking about this after reading some Facebook status updates from an old friend I grew up with in the Point of Pines. She was messaging from Cape Cod, where her family has gone for some rest. It’s a painful time for them, because a friend has been found dead, allegedly murdered at the hands of her ex-boyfriend.

“On the cape awaiting the rest of my children and my honey. We need to regroup, relax and help my girls start to heal. Hug your loved ones, tell them you love them everyday. Life is hard.”

Losing close friends and family is hard. I’ve been there three times. They are doing the right thing, though, going to the ocean for solace.

During the worst moments of my younger years, the ocean was an escape route within feet of my front steps. I would sit on the rocks and think things through. I would walk from the Pines all the way to the other end and back.

The process would usually take about 90 minutes — enough time to process what I was feeling. It didn’t necessarily make me happier, and much of the time thoughts just swirled around uselessly in my head.

But I always came back from the beach a little calmer, a little stronger and ready to deal with whatever I had to face.

You could say the ocean would speak to me, talking me off the ledge.

I live away from the coast now, in a city sliced in half by the Merrimack River.

The river has an equally calming effect on me, and I walk along it every chance I get.

But every once in awhile I go back to Revere or a closer place like Newburyport or Salisbury to get my pep talk from the sea.

I hope my old friend and her family get what they need from the sea this time. I suspect they won’t walk away with any less pain than what they feel right now. But I have no doubt they’ll leave there with the added strength to get through the sadness.

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Not What God Wants Me To Be, But Not The Person I was

The title of this post is a popular saying among those who use the 12 Steps to bring their addictive behavior to heel. It’s a good line to keep in mind when you’re ready to lose patience with yourself and slip into self-loathing.

Mood music:

http://youtu.be/jYpydtdlWxA

There’s a lot about myself that still has to change. I still get angry too easily. I still get self absorbed. I still give in to OCD thinking and actions, even when I know better. I still suck at saving money. Little problems still turn into big crises in my head.

But I don’t see a reason to beat myself over it, because I used to be much, much worse.

A temper today involves angry thoughts and self pity. As a young punk a temper meant punching dents into walls (I lacked the muscles to make a hole), flipping off people on the highway for cutting me off or, worse, getting touchy when I cut them off. It also meant unleashing a torrent of verbal vitriol.

Getting self absorbed back then meant spending what I wanted, eating what I wanted and making the decisions I wanted with no regard for anyone else. I still fall into that behavior, but I catch it more quickly than before and correct myself as much as possible. Doing service has been good for me because it gives me fewer opportunities to stray. Being a husband and father has helped, too.

Giving into OCD today means I may go on a cleaning spree at the moment I need to be doing other things. It means I may check and re-check my laptop bag to make sure the machine is inside, dooming myself to a longer, more traffic-laden commute in the process. It means I’ll occasionally run short on patience. But back then, it meant being blinded to everything around me by obsessive worrying about things that in hindsight were a lot of nothing. Which, in turn, led to the selfish behavior.

I bring this stuff up because everyone has a cross or six to carry on a daily basis, and it’s easy to give in to the worst kind of thinking and write yourself off as a failure.

In times like this, it’s also helpful to remember what Clarence the angel scribbled in the book he gave George Bailey at the end of “It’s a Wonderful Life” — “No man is a failure who has friends.” I used to think I had no friends. Then I realized the problem was that I was ignoring my friends in favor of isolation.

We all have something to offer and to live for. We’re all screw-ups — nothing like the people God wants us to be.

But if we’re just a little better than we once were, that’s huge.

I’m going to keep working on being who God wants me to be. It’s an almost impossible task, because how do you ever really know what God wants you to be (until you’re dead and he tells you directly, anyway)?

He always leaves clues, though. So instead of feeling sorry for ourselves we can simply do the best with the clues we’ve got.

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Back Story Of THE OCD DIARIES

Since I’ve been adding new readers along the way, I always get questions about why I started this thing. I recently expanded the “about” section, and that’s a good starting point. But more of a back story is in order.

Mood music:

Before I started THE OCD DIARIES in December 2009 with a post about depression hitting me during the holidays, I had always toyed with the idea of doing this. The reason for wanting to was simple: The general public understands little about mental disorders like mine. People toss the OCD acronym around all the time, but to them it’s just the easy way of saying they have a Type-A personality.

Indeed, many Type-A people do have some form of OCD. But for a smaller segment of the population, myself included, it’s a debilitating disease that traps the sufferer in a web of fear, anxiety, and depression that leads to all kinds of addictive behavior. Which leads me to the next reason I wanted to do this.

My particular demons gave me a craving for anything that might dull the pain. For some it’s heroin or alcohol. I have gone through periods where I drank far too much, and I learned to like the various prescription pain meds a little too much. But the main addiction, the one that made my life completely unmanageable, was binge eating.

Most people refuse to acknowledge that as a legitimate addiction. The simple reason is that we all need food to survive and not the other things. Overeating won’t make you drunk or high, according to the conventional wisdom. In reality, when someone like me goes for a fix, it involves disgusting quantities of junk food that will literally leave you flopping around like any garden-variety junkie. Further evidence that this as an addiction lies in the fact that there’s a 12-Step program for compulsive over-eaters called Overeater’s Anonymous (OA). It’s essentially the same program as AA. I wanted to do my part to make people understand.

Did I worry that I might get fired from my job for outing myself like this? Sure. But something inside me was pushing me in this direction and I had to give in to my instincts. You could say it was a powerful OCD impulse that wasn’t going to quit until I did something about it.

I write a lot about my upbringing, my family and the daily challenges we all face because I still learn something each day about my condition and how I can always be better than I am. We all have things swirling around inside us that drive us to a certain kind of behavior, and covering all these things allows me to share what I’ve learned so others might find a way out of their own brand of Hell.

I’m nothing special.

Every one of us has a Cross to bear in life. Sometimes we learn to stand tall as we carry it. Other times we buckle under the weight and fall on our faces.

I just decided to be the one who talks about it.

Talking about it might help someone realize they’re not a freak and they’re not doomed to a life of pain.

If this helps one person, it’ll be worth it.

When I first started the blog, I laid out a back story so readers could see where I’ve been and how personal history affected my disorders. If you read the history, things I write in the present will probably make more sense.

With that in mind, I direct you to the following links:

The Long History of OCD

An OCD Christmas. The first entry, where I give an overview of how I got to crazy and found my way to sane.

The Bad Pill Kept Me from the Good Pill. How the drug Prednisone brought me to the brink, and how Prozac was part of my salvation.

The Crazy-Ass Guy in the Newsroom. Think you have troubles at work? You should see what people who worked with me went through.

The Freak and the Redhead: A Love Story. About the wife who saved my life in many ways.

Snowpocalypse and the Fear of Loss. The author remembers a time when fear of loss would cripple his mental capacities, and explains how he got over it — mostly.

The Ego OCD Built. The author admits to having an ego that sometimes swells beyond acceptable levels and that OCD is fuel for the fire. Go ahead. Laugh at him.

Fear Factor. The author describes years of living in a cell built by fear, how he broke free and why there’s no turning back.

Prozac Winter. The author discovers that winter makes his depression worse and that there’s a purely scientific explanation — and solution.

Have Fun with Your Therapist. Mental-illness sufferers often avoid therapists because the stigma around these “shrinks” is as thick as that of the disease. The author is here to explain why you shouldn’t fear them.

The Engine. To really understand how mental illness happens, let’s compare the brain to a machine.

Rest Redefined. The author finds that he gets the most relaxation from the things he once feared the most.

Outing Myself. The author on why he chose to “out” himself despite what other people might think.

Why Being a People Pleaser is Dumb. The author used to try very hard to please everybody and was hurt badly in the process. Here’s how he broke free and kept his soul intact.

The Addiction and the Damage Done

The Most Uncool Addiction. In this installment, the author opens up about the binge-eating disorder he tried to hide for years — and how he managed to bring it under control.

Edge of a Relapse. The author comes dangerously close to a relapse, but lives to fight another day.

The 12 Steps of Christmas. The author reviews the 12 Steps of Recovery and takes a personal inventory.

How to Play Your Addictions Like a Piano. The author admits that when an obsessive-compulsive person puts down the addiction that’s most self-destructive, a few smaller addictions rise up to fill the void. But what happens when the money runs out?

Regulating Addictive Food: A Lesson in Futility. As an obsessive-compulsive binge eater, the author feels it’s only proper that he weigh in on the notion that regulating junk food might help. Here’s why the answer is probably not.

The Liar’s Disease. The author reveals an uncomfortable truth about addicts like himself: We tend to have trouble telling the truth.

Portable Recovery. Though addiction will follow the junkie anywhere in the world, the author has discovered that recovery is just as portable.

Revere (Experiences with Addiction, Depression and Loss During The Younger Years)

Bridge Rats and Schoolyard Bullies. The author reviews the imperfections of childhood relationships in search of all his OCD triggers. Along the way, old bullies become friends and he realizes he was pretty damn stupid back then.

Lost Brothers. How the death of an older brother shaped the Hell that arrived later.

Marley and Me. The author describes the second older brother whose death hit harder than that of the first.

The Third Brother. Remembering Peter Sugarman, another adopted brother who died too early — but not before teaching the author some important lessons about life.

Revere Revisited.

Lessons from Dad. The author has learned some surprising lessons from Dad on how to control one’s mental demons.

The Basement. A photo from the old days in Revere spark some vivid flashbacks.

Addicted to Feeling Good. To kick off Lent, the author reflects on some of his dumber quests to feel good.

The lasting Impact of Crohn’s Disease. The author has lived most of his life with Crohn’s Disease and has developed a few quirks as a result.

The Tire and the Footlocker. The author opens up an old footlocker under the stairs and finds himself back in that old Revere basement.

Child of  Metal

How Metal Saved Me. Why Heavy Metal music became a critical OCD coping tool.

Insanity to Recovery in 8 Songs or Less. The author shares some videos that together make a bitchin’ soundtrack for those who wrestle with mental illness and addiction. The first four cover the darkness. The next four cover the light.

Rockit Records Revisited. The author has mentioned Metal music as one of his most important coping tools for OCD and related disorders. Here’s a look at the year he got one of the best therapy sessions ever, simply by working in a cramped little record store.

Metal to Stick in Your Mental Microwave.

Man of God

The Better Angels of My Nature. Why I let Christ in my life.

The Rat in the Church Pew. The author has written much about his Faith as a key to overcoming mental illness. But as this post illustrates, he still has a long way to go in his spiritual development.

Absolute Power Corrupts Absolutely. The author goes to Church and comes away with a strange feeling.

Running from Sin, Running With Scissors. The author writes an open letter to the RCIA Class of 2010 about Faith as a journey, not a destination. He warns that addiction, rage and other bad behavior won’t disappear the second water is dropped over their heads.

Forgiveness is a Bitch. Seeking and giving forgiveness is essential for someone in recovery. But it’s often seen as a green light for more abuse.

Pain in the Lent. The author gives a progress report on the Lenten sacrifices. It aint pretty.

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“Do Something Every Day That Scares You”

During some leadership training at work a few months ago, the facilitators urged us to follow the advice of Eleanor Roosevelt and “Do something every day that scares you.” Now comes this new Sixx A.M. album and a song  called “Are You With Me Now” with the line, “Find the places that scare you, come on I dare you…”

Mood music: 

http://youtu.be/ede2_tuZJp8

A cosmic reminder to get out of my comfort zone? Perhaps. But it’s a tricky exercise, and not because I’m too scared to do something big and risky.

I’ve done a lot of things that were big and risky for me in recent years. Now I’m left with a bunch of little things that scare me, and the bigger things seem easier in the rear-view mirror.

The most fearsome thing I’ve done is confront the fear and anxiety that used to torment me. To do so, I had to make the decision to try out an antidepressant called Prozac. In my mind back then, to take a pill meant admitting defeat and trying something that could make me a lot worse. But desperation forced me to move past those feelings and in I went.

That was five years ago, and I haven’t had a single anxiety attack since then. Without the anxiety, the fear started to lose its grip.

A bunch of other fears had to be faced leading up to that point, of course. Fear of going to a therapist because he or she would probably just confirm that I was a freak who didn’t fit in with the rest of society.

Fear of going to an Overeater’s Anonymous meeting because the very name sounded embarrassing to me. A 12-Step program for binge eaters? That would surely make me look like a freak, since, you know, binge eating isn’t a genuine addictive behavior according to some. Forget that as an anonymous group, no one was going to know I was doing it anyway. I knew, and that was scary enough.

Admitting I was powerless against my addictions and putting my full trust in God to remove the defects was scary, because OCD is all about trying to control everything. The insanity of the disorder is the reality that in the big picture, we have absolutely no control over most things in life.

Making amends with people from my past for things that I did to them back then was scary. When a relationship fades on a bad note, the hardest thing on Earth is to look the person in the eye and say you’re sorry.

The decision to stop drinking was scary, because after I put the food down I was relying on a steady flow of alcohol as a crutch. Pick up a drink to put down the food. “Normal” addicts usually do it the other way around.

Looking at all this, I feel like I’ve heeded the call of Eleanor Roosevelt and Sixx A.M. But not entirely.

I’ve faced down a lot of big fears and I’m better for it. But I still have a bunch of little fears that are rooted in things that may seem insignificant by comparison.

One fear is to shut down the laptop, pack it away for several days and exist without the ability to see what everyone is doing all the time. I reigned in my addictions to food and alcohol. I brought the compulsive spending down to a dull roar. But the Android. The Laptop. Technology is a new addiction and I’m a slave.

In some respects, it’s strange that this is now my lot in life. For most of my adulthood, I was never an early adopter of the latest gadgetry. I didn’t own an iPod until late 2008, and it’s one of the older models. I was still using a Walkman and cassette tapes long after everyone started switching to digital music.

And yet here I am, skilled to the gills in the ways of smartphones, social networking and squeezing Internet connectivity out of the most remote places.

Shutting it all down? That would scare me. For now, I have the best excuse in the world not to do it: My job. Without the Internet, I can’t do the job.

Another fear would be to join a Way of Life (AWOL) group. AWOL is a method of studying the Twelve Steps using a specific format. It involves what some might call brutal discipline. It’s a closed study group. On the surface, I see these groups as too rigid — living examples of the solution becoming an addiction. And yet several people who I know to be perfectly sane keep telling me it’s worth doing.

Not traveling scares me. There’s always the fear that if I miss an opportunity to network with industry peers and simply be seen, I’ll become a nobody again.

That last one is an interesting fear, since one of the fears I kicked long ago WAS a fear of travel. It used to terrify me. Now I’m terrified to stop.

I’m a person of contradictions, I admit.

But facing the bigger fears tells me I can face these smaller ones.

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Firing Someone For Mental Illness Is An Outrage

If someone does a lousy job at work, they deserve to be fired. If someone does the job well but is fired because they have a mental illness, that’s an outrage.

Mood music:

[spotify:track:0OGwOky2l941SPRkE56kU9]

This morning’s tirade brought to you by this comment posted on the LinkedIn NAMI group discussion board:

I lost my job as Director – Communications from a regional Chamber of Commerce after disclosing my 30 years of living and working with bipolar in Dec. 2009.

Now after trying to find another job, I applied for SSDI. I just got rejected with a letter saying,”The medical evidence in your file shows that your condition does cause restriction in your ability to function, however, while your condition prevents you from doing previous jobs, you still have the ability to do unskilled work.” 

I was diagnosed with bipolar in 1980, have bouts of depression, social anxiety, migraines, gerd and visable essential tremors in my hands and legs. I cannot stand unsupported for more than a few minutes and the tremors make me not want to leave my home and when I do anxiety worsens them. I can take medication to calm the tremors but those meds also negatively effect my memory, errors, and cognitive abilities. 

I know most people get rejected but I am almost 60 and have worked in public marketing communications at managerial levels since 1984. What should I do?

 I felt I needed to disclose as the work was socially demanding and my tremors showed.

I felt in disclosing that especially a Chamber of Commerce would be somewhat more understanding. Instead they became hostile and took away my startegic job duties and bumped me down to a typist.

Now, let’s start with some clarifications: If this person’s illness prevented them from doing their job, that does put the employer in a bind. I get that. If her condition has suddenly nosedived and it prevents her from doing what she used to do, that’s a tragedy.

The question I have is this: If someone loses their ability to do their job because of heart disease, a terrible injury or cancer, do they get dropped cold by their employer? Do they get treated in a hostile manner? Not from my experience.

I’ve known many people who developed a disease or got in an accident, and none lost their jobs. Their seat simply stayed empty and, in some cases, temps were brought in to do their work until they either recovered or resigned. They were treated with support.

If this woman did her job admirably for many years and just recently hit a period of intensified mental illness, she should be treated like the cancer or heart patient. To fire her because she’s “gone crazy” is, in my opinion, unacceptable.

It’s as insidious as, say, putting limits on coverage for mental health care.

These stories ratchet up the fear level for those suffering from depression, OCD, bipolar disorder and the like. It proves to the sufferer that mental illness is still viewed as a less-than-legitimate illness, something that’s more a figment of the sufferer’s imagination.

I’m not an expert. I can only base my opinion on personal experience. But I’ve heard enough horror stories from other people to know this crap is for real.

That’s exactly why I started this blog.

I chose to out myself and share my experiences so other sufferers might realize they are not freaks and that they have a legitimate, very easily explained medical problem that’s very treatable. It takes that kind of understanding for someone to get up and get help.

I try not to engage in political debate because this is such a personal issue, though sometimes I have to make a point on current events like I did when Health care Reform passed last year.

I do know this, though: Many good people have died because of mental illness. They were ashamed and afraid to get help because of the stupid notion that they are somehow crazy and either need their ass kicked or be institutionalized. So they try to go it alone and either end up committing suicide because their brains are knocked so far off their axis or they die from other diseases that develop when the depression forces the sufferer into excessive eating, drinking, starvation, drug taking or a combination of these things.

There’s also the ridiculous idea that a person’s workmanship becomes valueless when they’re in a depression. If someone misses work because they have cancer, they are off fighting a brave battle. They are fighting a brave battle, of course. No doubt about it.

But depression? That person is slacking off and no longer performing.

I’ve been able to debunk that idea in my own work circle. It helps that I’ve been blessed to work with exceptional, amazing and enlightened people. At work, I’ve gotten nothing but support. I do my job well, and that’s good enough for them. That’s how it should be.

Luckily for me, I got rid of my fear and anxiety long ago, so I’m going to keep sharing my experiences. It probably won’t force change  or tear down the stigma single-handedly.

But if a few more people get just a little more fight in them after reading these diaries, it will have been well worth the risks.

As for what the woman above can do about her situation, the folks in the LinkedIn forum offered some good advice. The best, in my opinion, came from mental health advocate Bonnie Neighbour:

You have two possible areas of recourse. You can sue for unlawful termination. I am not referring to that choice with the rest of this comment. 

Or you can appeal the SSDI denial. Something people need to k ow that is not commonly talked about is that, in deciding on your application for SSDI. the Social Security Dept. will only request records from your doctors, etc. one time. If the applicable records are not submitted within the time frame (and it’s wires short) the Social Security Dept. Decides upon (and they most likely will not tell you the time frame but it’s a matter of weeks) they will automatically deny the claim. You can appeal and get the appropriate records submitted for the appeal. Thus is one reason so many people are denied. 

For those who have not applied for SSDI but who may in the future, the prudent thing to do is collect all your records before you begin the application process and submit them all at once. If you depend on hour doctors’ offices to respond the a request by the Social Security Dept., the likelihood of receiving a denial based on incomplete records is huge. And you will most likely never know why. 

Good luck. 

A third option for you is to find your passion and start doing it — even if it’s volunteer only. For it is by living a fulfilling and passionate life that we stay healthy and can find and maintain mental health recovery.

You can pursue option three while considering option one or two.

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Guilt: The Blessing and the Curse

Everyone struggles with guilt from time to time. Guilt is good in that feeling it means you have the desire to right a wrong. But when you mix it with OCD, the results are catastrophic.

MOOD MUSIC: “Step Outside” by 360s

I’ve always had a powerful guilty conscience. For the most part it has served me well. In my moments of anger, hatred, depression and despair, it has kept me from going too far in my quest to seek revenge on people for whatever I felt they did to me at the time.

Without it, I probably would have done things that would have made people abandon me. Or, I might have done something that would have landed me in jail. The guilty conscience kept me from going too far. That’s probably why God put it in me.

At the same time, guilt would super-charge all of my OCD ticks: The worry out of control, the binge eating, the self loathing and the repetitive actions.

People like to joke about having Catholic or Jewish guilt thrust on them. Since I grew up Jewish and became a Catholic, I’ve found there’s some truth to that. My mother was and is the perfect stereotype of the so-called Jewish mother, using guilt whenever I made choices that weren’t to her liking. In the Catholic community, some people will push the guilt button if you let your kids talk too loud during Mass or if you vote for a Democrat.

But I can’t blame them. The fact that I’ve always had a guilty conscience stems from having done bad things: Lying, being cruel to someone, neglecting my soul.

In a lot of ways, I’ve caused it all on my own.

I still have a guilty conscience, but it’s not as destructive a force as it used to be.

I used to use guilty feelings as an excuse to beat myself to death. I’d typically do this by giving in freely to my addictions, binging until my gut hurt so much that I wanted to be dead. It would also cause me to avoid people I may have hurt along the way, when making things right with them would have been the better course.

In my biggest moments of guilt, I’d isolate myself in my room, not showering for days.

The smell would hit the few visitors I had like a punch in the face.

Somewhere along the way, though, I’ve been able to turn it around. The guilt is still there. I’ve just learned how to react to it in a healthier way.

If I hurt someone, instead of hiding I try to make amends with the person. In doing so, I’ve found that most people are kind, forgiving souls.

If I make bad decisions, I’m more likely to pray and turn it over to God.

Or I write about it here. That way, it’s at least out in the open, where I can get a better look at it and have a fair fight.

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Change Is Pain, But Not Impossible

Last night’s 12-Step meeting reminded me of just how hard real change is. I used to measure change by who won the next election. I’ve realized that the only real change that matters is within myself. Naturally, it’s the hardest, most brutal kind of change to achieve.

Mood music:

[youtube http://www.youtube.com/watch?v=yqkxDgCIsOw&fs=1&hl=en_US&rel=0]

Last night’s AA Big Book reading focused on steps 8, 9 and 10:

8. Made a list of all persons we had harmed, and became willing to make amends to them all.

9. Made direct amends to such people wherever possible, except when to do so would injure them or others.

10. Continued to take personal inventory and when we were wrong promptly admitted it.

The first few steps were much easier for me. Admitting I was powerless over my addiction was a piece of cake. I was so desperate by then that the admission was the reason I walked into an OA meeting. It takes desperation to walk into a room full of people you’re certain are crazy fanatical freaks. That’s exactly how they came across. Then I realized I was just like them and was in just the right place. Nearly three years in, I’ve determined that we’re not crazy and we’re not freaks. We’re just TRYING to be honest with ourselves and those around us. It makes us uncomfortable and edgy because it’s much more natural for an addict to lie. People like us are weird and often intolerable.

Acknowledging a higher power was easy enough, because I’ve always believed in God. But this step brought me closer to realizing my relationship with God was all wrong. It was transactional in nature: “Please God, give me this or help me avoid that and I’ll be good…” Because of OCD that was raging out of control, I tried to control everything. I couldn’t comprehend what it meant to “Let go and let God.” Once I got to that point it got easier, though I still struggle with a bloated ego and smoldering will.

Still, that stuff is easy compared to steps 8-10. To go to people you’ve wronged is as hard as it gets. You come face to face with your shame and it’s like you’re standing naked in front of people who have every reason to throw eggs and nails at you. At least that’s how it feels in the beginning.

Step 9 has been especially vexing. There are some folks I can’t make amends with yet, though Lord knows I’ve tried.

I feel especially pained about my inability to heal the rift with my mother and various people on that side of the family. But it’s complicated. Very complicated. I’ve forgiven her for many things, but our relationship is like a jigsaw puzzle with a lot of missing pieces. Those pieces have a lot to do with boundaries and OCD triggers. It’s as much my fault as it is hers. But right now this is how it must be.

I wish I could make amends with the Marley family, but I can’t until they’re willing to accept that from me. I stabbed them in the gut pretty hard, so I’m not sure of what will happen there.

But there have been some unexpected gifts along the way.

Thanks to Facebook, I’ve been able to reconnect with people deep in my past and, while the need to make amends doesn’t always apply and the relationships can never be what they were, all have helped me heal. There’s Joy, Sean’s widow. She’s remarried with kids and has done a remarkable job of pushing on with her life. She dropped out of my world for nearly 14 years — right after Sean’s death — until recently. The contents of our exchange are private, but this much I can tell you: I was wrong all these years when I assumed  she hated my guts and wanted nothing more to do with me. I thought my old friend Dan Waters hated my guts too. But here we are, back in touch.

Miracles happen when you get out of your own way. But it sure can hurt like a bitch.

I’ve also half-assed these steps up to this point. There’s a much more rigorous process involved. You’re supposed to make a list and only approach certain people you’ve wronged after talking to your step-study sponsor. It hasn’t exactly worked out that way. I just started the Big Book study in January, so I have a long way to go.

It’s funny how, when we’re still in the grip of our addictions, we dream of the day when we’ll be clean. There’s a false expectation that all will be right with the world. But that’s never the case.

I’ve heard from a lot of addicts in recovery who say some of their worst moments as a human being came AFTER they got sober. 

That has definitely been the case for me. I’d like to think I’m a better man than I used to be, but I still screw up today. And when I do, the results are a spectacular mess.

But while I’m far from done with this stuff, I can already say I’m happier than I used to be.

Change is hard and painful, but when you can move closer to it despite that, the results are beyond comprehension.

I guess the old cliche — no pain, no gain — is true.