Killed By Fear (Doctor Phobia and the C Word)

The Fredstock 2 benefit concert Erin and I went to Friday night hit me where I live for another reason besides a love of music: The event was also about raising awareness about colorectal cancer. I’m a high-risk case.

Mood music:

I never knew Fred Ciampi, the man the benefit is named for. He passed away this winter from colorectal cancer, and the benefit was also meant to help out his wife, Claudia DeHaven Ciampi-Biddle. (Donations can still be made by writing to Claudia@snowlionyoga.com. Please put Fredstock Donation in the subject.)

When I saw his picture, my first thought was, “Man, he was young.” In fact, he died just shy of his 40th birthday.

The other thing that came to mind was that it could just as easily be me in the obituary. The childhood Crohn’s Disease that reduced my colon to a tube of scar tissue also left me at a much higher risk for colon cancer.

It’s something I’ve had to live with since 1990, when I got a letter from my then-doctor recommending I get regular colonoscopies to monitor for possible colon cancer. As a 20-year-old I balked. You never really worry about cancer at that age. But I had the test anyway.

It was a good thing I did.

They found hundreds of polyps throughout the colon. These weren’t — and aren’t — the type of polyps that they typically worry about. These are more like skin tags. Specifically, they are part of the scar tissue.

The doctor was pretty stern with me. “You can’t wait five years between colonoscopies,” he told me. “This stuff can be dangerous.”

Naturally, I went eight years before the next one, and in those years I did some of the most vicious binge eating of my life. Each year that passed made me more fearful of what was going on inside.

I got the test done in 1999 because of some bleeding. Everything was fine, and I’ve done much better at getting a colonoscopy every other year to keep an eye on things. So far, so good, though I’m about a year overdue for the next one. I better make that call this week.

Perhaps I’m a fatalistic personality, but I won’t be a bit surprised if colon cancer is found in me at some point. I haven’t had a Chrohn’s attack since 1986 and I know my luck could run out sooner or later.

But I don’t really fear it like I used to. I figure I get the test frequently enough that anything they find will be at an early and treatable stage.

If I’ve learned anything from all this, it’s that fear and embarrassment is the deadliest risk of all.

People are too embarrassed to get a colonoscopy because of how the procedure is done. No one has to know about it except their doctor and maybe a couple family members. But they avoid the test anyway because they still find it embarrassing. Then they end up dying of colon cancer a few years later. Not in every case, but in many.

Embarrassment is a powerful thing. It keeps a person from seeing things as they really are and keeps them from facing their demons.

It’s not always bad to be embarrassed. God put the emotion in us for a reason. If we’re a jerk to someone or we get caught doing something unethical, we should feel shame.

But we shouldn’t feel shame over an illness and shouldn’t be embarrassed about getting help, whether it’s for colon trouble or the mental illness and addiction at the heart of this blog.

I’m not saying Fred was like that. Like I said, I never knew him.

But I know a thing or two about fear, shame and embarrassment.

Don’t let those things keep you from letting the professionals help you.

OCD Diaries

Prayers For A Friend and His Wife

Dave Lewis, a good friend from the information security community, posted this yesterday: “My wife, Diana, was diagnosed with leukemia today.”

Mood music:

Many of you know Dave (@gattaca on Twitter) as founder of the Liquidmatrix Security Digest. He is also senior security analyst at AMD and someone who works tirelessly to promote events that make security professionals smarter and better.

I’m asking those who read this to keep Dave, Diana and their young daughter in your prayers.

I’ve been through plenty of rough stuff in my life — we all have — but no matter how many body blows a person has absorbed, something like this is going to be overwhelming.

I wish Diana a quick recovery.

Dave’s a strong soul, and I know he’ll do all the right things to pull the family through.

A Visit To The Prozac Nurse

Last night was my annual pilgrimage to Beverly, Mass. for an appointment with the nurse who manages my Prozac intake. She has done better for me than my primary care doctor did. Here’s why.

Mood music:

Drugs used to treat mental disorders must be tightly controlled. Too little and it won’t help you. Too much can make your disorder worse.

When I first started taking Prozac in 2007, my primary care doctor was prescribing it. My depression and anxiety were melting a hole in my heart and I was at my wit’s end. I had resisted medication for a long time because I didn’t believe in them. I saw it as quitting.

Needing medicine to balance out my brain chemistry and make me human meant I was weak and couldn’t control the OCD on my own.

That’s the thing about OCD. The craving for control blinds you.

But years of therapy, though helpful, hadn’t helped me break the spell of fear and anxiety, and that was limiting me. So at my doctor’s suggestion, I gave it a try.

The anxiety and depression evaporated within two weeks and I felt like a new man. But I would still be in and out with mood swings. I eventually figured out that my doctor wasn’t the best person to manage this drug. He’s a fine doctor, but these capsules have a complexity I think was beyond his expertise.

When I started seeing my latest therapist, he gave me a hell of an education.  He was the first therapist to help me understand the science behind mental illness and the way an inbalance in brain chemistry can mess with your thought traffic. He also provided me with quite an education on how anti-depressants work. Indeed, there’s a science to it. Certain drugs are designed to shore up the brain chemicals that, when depleted, lead to bi-polar behavior. Other meds are specifically geared toward anxiety control. In my case, I needed the drug that best addressed obsessive-compulsive behavior. For me, that meant Prozac.

He also told me it was stupid to take my prescriptions from a primary care physician. Essentially, he said, that was like putting a 12-year-old in charge of a dynamite stockpile.

So he sent me to my current Prozac nurse.

Last year, she knocked my 60-milligram dosage back to 40 for the summer. With the longer days and extra sunlight, the logic was that I wouldn’t need as much. It worked until late summer, when a couple weeks of cloudy weather and earlier sunsets sent my brain chemistry out of whack.

I went back up to 60 and had some steep mood swings in the process. It evened out fairly quickly, but as far as I was concerned, those mood swings weren’t worth the experiment.

So last night, she decided to keep me at 60. If it isn’t broken, why try to fix it?

She asked how I was doing with my therapist.

“Excellent,” I said. “I walk in there with a large cup of Starbucks and he glares at me like a father who can’t get his kid to tie his shoes just right.”

She smiled. “Next time,” she said, “You should walk in with two large cups.”

To that, we laughed like schoolkids who had just shared a dirty joke.

My therapist has buttons I like to push. One button is that he thinks everyone should quit caffeine and do yoga. I’m apparently not the only one who likes to have fun with that. The beauty of it is that I can do that, he can take it, and I still get something valuable from my appointments.

As I’ve said before, drugs without therapy won’t work in the long run. Mental wellness requires a lot of things: Careful diet, therapy is a must if you have a disorder and sometimes you need medication, though that isn’t always the case.

When I have an appointment with the Prozac nurse I usually cuss about it. It takes me an hour to get to her office for something we could do over the phone.

Yesterday, I badly wanted to cancel.

Erin wouldn’t have let me, anyway.

“You need these appointments,” she said yesterday, as she frequently does when I balk at going.

And so I went. I’m glad I did.

OCD Diaries

Medical Marijuana For OCD Treatment: Not For Me

I just read an interesting blog post on how medical marijuana could be used to treat OCD. There are medicinal helpers for this disease, but pot would never work for me.

Mood music:

http://youtu.be/pjloMejBQEU

Here’s an excerpt of the article, from the official website of hemp legalization advocate Jack Herer (originally published on the All Voices site):

OCD is a treatable disease. With adequate therapy and correct counseling by experienced psychiatrist and physicians, the intensity of the disease can be decreased in little time. Effective treatments for obsessive-compulsive disorder are now easily available, and fresh researches are yielding new and improved therapies that can help people with OCD and other anxiety disorders lead productive, fulfilling lives.

Some doctors even say that Medical Marijuana (Cannabis) can also help in eliminating the disease. Dr. Breen of Southern California insisted that he has been successful in treating two patients with OCD via medical Marijuana. He shared, “Today I had two patients who have been successfully treating their symptoms of obsessive compulsive disorder with medical marijuana. One was a 46-year-old man whose symptoms are primarily having ‘to check things all the time.’ He explained having to walk back to his car all the time to check his door locks etc. The second was an 18-year-old male who had the compulsion to try and touch the ceiling in a room. In both cases their symptoms were disruptive to their daily lives.

Let me be clear: I personally have nothing against pot use. I’ve seen alcoholics do far more damage to themselves and others than those who smoke marijuana. I’m also dumbfounded that we don’t use hemp a lot more often as an alternative fuel source and other things, like paper. Keeping pot illegal does nothing to curb drug use. It’s as useless as Prohibition was in the 1920s.

It may even be helpful to those suffering with OCD.

But it is not for me.

The reason is simple: I have an addictive personality. I can get addicted to just about anything with destructive results. My main problem is with flour and sugar. Alcohol is a close second.

I smoked plenty of pot in my late teens and early 20s and I know how I react to it: I binge on any kind of food available to me until I’m ready to explode. Then I pass out and, when I come to, forget what I was doing. I must have liked that enough to keep doing it for a time. But then I kept binge eating long after I stopped enjoying the feeling I got — if I ever did at all.

I also bristle at the suggestion that a drug can “eliminate” the disorder. You never completely get rid of it. You just learn to manage it in a way where it no longer makes your life unmanageable.

But if a little marijuana helps someone else get there, who am I to judge?

OCD Diaries

Even If Talk Is Cheap, Drugs Alone Won’t Work

If a recent story in The New York Times is to be believed, psychiatrists are ditching talk therapy in favor of quick-to-the-draw prescription solutions because insurance companies won’t pay them enough for the broader treatment.

As someone who benefited greatly from both therapy and medication, I find this disturbing.

Mood music:

[spotify:track:40T969H60rqt5v1tWZDEMS]

From the article, written by Gardiner Harris:

Like many of the nation’s 48,000psychiatrists, Dr. Levin, in large part because of changes in how much insurance will pay, no longer provides talk therapy, the form of psychiatry popularized by Sigmund Freud that dominated the profession for decades. Instead, he prescribes medication, usually after a brief consultation with each patient. So Dr. Levin sent the man away with a referral to a less costly therapist and a personal crisis unexplored and unresolved.

Medicine is rapidly changing in the United States from a cottage industry to one dominated by large hospital groups and corporations, but the new efficiencies can be accompanied by a telling loss of intimacy between doctors and patients. And no specialty has suffered this loss more profoundly than psychiatry.

Trained as a traditional psychiatrist at Michael Reese Hospital, a sprawling Chicago medical center that has since closed, Dr. Levin, 68, first established a private practice in 1972, when talk therapy was in its heyday.

Then, like many psychiatrists, he treated 50 to 60 patients in once- or twice-weekly talk-therapy sessions of 45 minutes each. Now, like many of his peers, he treats 1,200 people in mostly 15-minute visits for prescription adjustments that are sometimes months apart. Then, he knew his patients’ inner lives better than he knew his wife’s; now, he often cannot remember their names. Then, his goal was to help his patients become happy and fulfilled; now, it is just to keep them functional.

Dr. Levin has found the transition difficult. He now resists helping patients to manage their lives better. “I had to train myself not to get too interested in their problems,” he said, “and not to get sidetracked trying to be a semi-therapist.”

This is tragic on so many levels.

I’ve said it before: Medication (Prozac) has been a critical part of my OCD management. It put my defective brain chemistry into balance and greatly reduced the moments where my brain would pulsate out of control with worry and obsessions until it incapacitated me.

But had I gone on the drug without doing the brutally hard therapy first, I would not be doing anywhere near as well as I am today. I can promise you that.

Mental health is like physical health. There is no magic bullet — or magic pill — fix.  You need a combination of diet, rest and exercise to maintain health as well as any medicine that you may need.

Talk therapy helps you build your coping tools from scratch. They become your lifeline to sanity, especially if the drugs stop working, which can happen in a variety of circumstances.

This is just one more example of the health insurance industry putting the bottom line before wellness. I don’t want to beat on the insurance providers just for the hell of it. The industry does face the genuine problem where treatments are becoming more expensive, especially in a population where many refuse to take care of themselves.

Now that I’ve gotten that out of the way…

There are things one can do to cut costs. But when you cut into the muscle of the treatment — in this case talk therapy — the treatment will bleed to the point of near-death.

Now I know what they’re thinking: People can go to a therapist for talking and the other guy for medication, but now we have another problem. Not everyone can afford both.

In my case, I go to a therapist to talk things out, and a nurse on his staff is authorized and in charge of writing my prescription.

Psychiatry and therapy are not exactly the same beast.

But a good psychiatrist includes the talking part and uses it to maximum effect.

Force them to stop doing that and many people will fall through the cracks.

A Boy’s Life on Prednisone: A Class Photo History

I’ve mentioned before that I had to take a lot of this nasty drug called Prednisone as a kid, and how the side effects were almost as bad as the Crohn’s Disease flare-ups the drug was meant to snuff out.

Well, my old elementary school friend Myles Lynch posted some class pics on Facebook that show the physical impact. Looking at them brings back memories good and bad.

Let’s start with first grade, before the disease surfaced. I’m dead-center in the back row, looking like a normal kid:

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By the time the second-grade class photo is taken, I’ve been diagnosed with Crohn’s Disease and I’ve spent six weeks in the hospital. The results of the Prednisone on my face are pretty clear. I’m second from left in the back row:

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By the time the third-grade pic is taken, I’ve been through my second flare-up and six-week hospital stay. I’m in the back row, two kids to the right of the teacher, Ms. Cole:

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I’m not in the fourth-grade class picture, because as the photo is being taken, I’m in the middle of a third six-week hospital stay for another flare-up. The disease usually struck sometime between Halloween and Thanksgiving. This time, it waited until spring.

By sixth grade I’ve been off Prednisone for a while. You can see it in my face, front row, far left:

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The other kids in these pictures have had their own challenges and joys in life. I’ve kept in touch with some of them. But here’s the important thing: Back then, when we were a small, close-knit community, before the puberty-driven bullying of middle school, these kids did all they could to make me feel better. When I was in the hospital they would send hand-made get-well cards. When I’d get out of the hospital, they would give me a warm, cheerful welcome back.

Those acts of kindness are something I will never forget.

The pictures also remind me a lot of what life was like in the hospital. Those hospital wards were like little communities, where the young patients would try to find ways to pass the time. We shared each other’s toys and watched the same TV shows. I always seemed to be the only Crohn’s patient on a floor full of kids with Cystic Fibrosis. Treatment for that disease was nothing like it is today, and many of the friends I made in the hospital died before they got to adulthood.

I lost a lot of blood back then, because I had a colon full of holes. But compared to my lost friends, I got off lucky.

I owe that to God and all the helpers he put in my path.

Whenever I’m having a bad day and I start to get cranky and impatient with people, I try to think back to those days. Doing so makes me remember how blessed I am, and how I should stop wasting time on hard feelings and earn that blessing by spending my life as one of those helpers.

I’ve been walking past Children’s Hospital these days on the way into the neighboring hospital my father has been in since suffering a stroke last week, and the memories come flooding back of the time when I was a frequent resident there. And seeing my father, with his eye patch and slackened mouth, makes me remember the things he used to do to keep me going.

During one stay, I was obsessed with getting a talking View-Master, where you put in these paper disks and look through a view lens at the scenes that blow up larger than life on a screen inside the gadget. The taking variety was all the rage in 1979, and I bellowed about it like the spoiled brat I was. You get very spoiled and miserable to be around when everyone is tending to your every need.

My father got me the talking View-Master, and bought me a new Star Wars action figure each week, followed by a trip to Friendly’s for ice cream on those occasions where I was allowed to have it.

The more emotional variety of affection was something he always struggled with, though in his way, he was doing all he could to show his love.

Amazing, the things that come back to you after looking at a few childhood pictures.

Back Story Of THE OCD DIARIES

Since I’ve been adding new readers along the way, I always get questions about why I started this thing. I recently expanded the “about” section, and that’s a good starting point. But more of a back story is in order.

Mood music:

Before I started THE OCD DIARIES in December 2009 with a post about depression hitting me during the holidays, I had always toyed with the idea of doing this. The reason for wanting to was simple: The general public understands little about mental disorders like mine. People toss the OCD acronym around all the time, but to them it’s just the easy way of saying they have a Type-A personality.

Indeed, many Type-A people do have some form of OCD. But for a smaller segment of the population, myself included, it’s a debilitating disease that traps the sufferer in a web of fear, anxiety, and depression that leads to all kinds of addictive behavior. Which leads me to the next reason I wanted to do this.

My particular demons gave me a craving for anything that might dull the pain. For some it’s heroin or alcohol. I have gone through periods where I drank far too much, and I learned to like the various prescription pain meds a little too much. But the main addiction, the one that made my life completely unmanageable, was binge eating.

Most people refuse to acknowledge that as a legitimate addiction. The simple reason is that we all need food to survive and not the other things. Overeating won’t make you drunk or high, according to the conventional wisdom. In reality, when someone like me goes for a fix, it involves disgusting quantities of junk food that will literally leave you flopping around like any garden-variety junkie. Further evidence that this as an addiction lies in the fact that there’s a 12-Step program for compulsive over-eaters called Overeater’s Anonymous (OA). It’s essentially the same program as AA. I wanted to do my part to make people understand.

Did I worry that I might get fired from my job for outing myself like this? Sure. But something inside me was pushing me in this direction and I had to give in to my instincts. You could say it was a powerful OCD impulse that wasn’t going to quit until I did something about it.

I write a lot about my upbringing, my family and the daily challenges we all face because I still learn something each day about my condition and how I can always be better than I am. We all have things swirling around inside us that drive us to a certain kind of behavior, and covering all these things allows me to share what I’ve learned so others might find a way out of their own brand of Hell.

I’m nothing special.

Every one of us has a Cross to bear in life. Sometimes we learn to stand tall as we carry it. Other times we buckle under the weight and fall on our faces.

I just decided to be the one who talks about it.

Talking about it might help someone realize they’re not a freak and they’re not doomed to a life of pain.

If this helps one person, it’ll be worth it.

When I first started the blog, I laid out a back story so readers could see where I’ve been and how personal history affected my disorders. If you read the history, things I write in the present will probably make more sense.

With that in mind, I direct you to the following links:

The Long History of OCD

An OCD ChristmasThe first entry, where I give an overview of how I got to crazy and found my way to sane.

The Bad Pill Kept Me from the Good PillHow the drug Prednisone brought me to the brink, and how Prozac was part of my salvation.

The Crazy-Ass Guy in the NewsroomThink you have troubles at work? You should see what people who worked with me went through.

The Freak and the Redhead: A Love Story. About the wife who saved my life in many ways.

Snowpocalypse and the Fear of LossThe author remembers a time when fear of loss would cripple his mental capacities, and explains how he got over it — mostly.

The Ego OCD BuiltThe author admits to having an ego that sometimes swells beyond acceptable levels and that OCD is fuel for the fire. Go ahead. Laugh at him.

Fear FactorThe author describes years of living in a cell built by fear, how he broke free and why there’s no turning back.

Prozac WinterThe author discovers that winter makes his depression worse and that there’s a purely scientific explanation — and solution.

Have Fun with Your TherapistMental-illness sufferers often avoid therapists because the stigma around these “shrinks” is as thick as that of the disease. The author is here to explain why you shouldn’t fear them.

The EngineTo really understand how mental illness happens, let’s compare the brain to a machine.

Rest Redefined. The author finds that he gets the most relaxation from the things he once feared the most.

Outing MyselfThe author on why he chose to “out” himself despite what other people might think.

Why Being a People Pleaser is DumbThe author used to try very hard to please everybody and was hurt badly in the process. Here’s how he broke free and kept his soul intact.

The Addiction and the Damage Done

The Most Uncool AddictionIn this installment, the author opens up about the binge-eating disorder he tried to hide for years — and how he managed to bring it under control.

Edge of a RelapseThe author comes dangerously close to a relapse, but lives to fight another day.

The 12 Steps of ChristmasThe author reviews the 12 Steps of Recovery and takes a personal inventory.

How to Play Your Addictions Like a PianoThe author admits that when an obsessive-compulsive person puts down the addiction that’s most self-destructive, a few smaller addictions rise up to fill the void. But what happens when the money runs out?

Regulating Addictive Food: A Lesson in FutilityAs an obsessive-compulsive binge eater, the author feels it’s only proper that he weigh in on the notion that regulating junk food might help. Here’s why the answer is probably not.

The Liar’s DiseaseThe author reveals an uncomfortable truth about addicts like himself: We tend to have trouble telling the truth.

Portable RecoveryThough addiction will follow the junkie anywhere in the world, the author has discovered that recovery is just as portable.

Revere (Experiences with Addiction, Depression and Loss During The Younger Years)

Bridge Rats and Schoolyard Bullies. The author reviews the imperfections of childhood relationships in search of all his OCD triggers. Along the way, old bullies become friends and he realizes he was pretty damn stupid back then.

Lost BrothersHow the death of an older brother shaped the Hell that arrived later.

Marley and Me. The author describes the second older brother whose death hit harder than that of the first.

The Third BrotherRemembering Peter Sugarman, another adopted brother who died too early — but not before teaching the author some important lessons about life.

Revere Revisited.

Lessons from DadThe author has learned some surprising lessons from Dad on how to control one’s mental demons.

The BasementA photo from the old days in Revere spark some vivid flashbacks.

Addicted to Feeling GoodTo kick off Lent, the author reflects on some of his dumber quests to feel good.

The lasting Impact of Crohn’s DiseaseThe author has lived most of his life with Crohn’s Disease and has developed a few quirks as a result.

The Tire and the FootlockerThe author opens up an old footlocker under the stairs and finds himself back in that old Revere basement.

Child of  Metal

How Metal Saved MeWhy Heavy Metal music became a critical OCD coping tool.

Insanity to Recovery in 8 Songs or LessThe author shares some videos that together make a bitchin’ soundtrack for those who wrestle with mental illness and addiction. The first four cover the darkness. The next four cover the light.

Rockit Records RevisitedThe author has mentioned Metal music as one of his most important coping tools for OCD and related disorders. Here’s a look at the year he got one of the best therapy sessions ever, simply by working in a cramped little record store.

Metal to Stick in Your Mental Microwave.

Man of God

The Better Angels of My NatureWhy I let Christ in my life.

The Rat in the Church PewThe author has written much about his Faith as a key to overcoming mental illness. But as this post illustrates, he still has a long way to go in his spiritual development.

Absolute Power Corrupts Absolutely. The author goes to Church and comes away with a strange feeling.

Running from Sin, Running With ScissorsThe author writes an open letter to the RCIA Class of 2010 about Faith as a journey, not a destination. He warns that addiction, rage and other bad behavior won’t disappear the second water is dropped over their heads.

Forgiveness is a BitchSeeking and giving forgiveness is essential for someone in recovery. But it’s often seen as a green light for more abuse.

Pain in the LentThe author gives a progress report on the Lenten sacrifices. It aint pretty.

Wanted: Psychiatric Specialists in the Emergency Room

A friend directed me toward a disturbing story on NPR’s website about the mentally ill languishing in ERs.

Mood music:

[youtube http://www.youtube.com/watch?v=NkJOZOOXJWk&fs=1&hl=en_US&rel=0]

Here’s the first few paragraphs of the report by Jenny Gold:

As he lay on a gurney in the emergency department of Memorial Hospital of Rhode Island, Erik grew increasingly upset. He had called the police to report a theft from his apartment, but wound up being taken to the hospital.

The ER staff quickly determined that Erik, 40, who has been diagnosed with schizoaffective disorder and PTSD, needed urgent psychiatric care, but there wasn’t much they could do.

Like many hospitals, Memorial doesn’t have a psychiatric unit, and all of the psychiatric units in the nearby facilities were full. Erik, a bright, articulate and devoutly religious man, had to wait nearly two days on a gurney in the ER before he could be transferred.

Mentally ill patients often languish in hospital emergency rooms for several days, sometimes longer, before they can be moved to a psychiatric unit or hospital. At most, they get drugs but little counseling, and the environment is often harsh.

A few thoughts on this:

–This is disturbing as hell when you consider the fact that when you listen to the phone recording from just about every therapist’s office, you are directed to the nearest emergency room in a crisis situation. Someone in a desperate state goes to the ER as directed only to find no help.

–The typical ER is an infuriating place to be because you almost always wait for hours unless you’ve been brought in by ambulance or you have blood pouring out all over the floor. I don’t necessarily blame ER staff for this. They never have enough resources. Some will debate me on that, but I’ve been in enough ERs to make the observation.

In the final analysis, I think the main responsibility for fixing this problem starts with the upper-level hospital administrators and boards of directors. They need to make it a priority to have emergency assistance for people with mental health emergencies.

If there’s a good reason they can’t do this, and I doubt there is, then mine and other therapists need to stop telling people to go to the emergency room.

How I Can Be Happy Despite Myself

I see a lot of moody people out there on Facebook and Twitter these days. Though I try not to put random complaints on my wall, my darker moods often come across in this blog. But in the big picture, I’ve found ways to be generally happy despite myself.

Mood music:

Allow me to share. But first, a couple acknowledgements:

1.) I stole this post’s title from somewhere.

2.) I readily admit that despite what I’m about to share, my reality doesn’t always match up with my words.

That said, no one who knows me can deny that I’m in a much happier place today than I was several years ago. I screw up plenty today, but I used to hate myself for screwing up. Today I may feel stupid when I fail, but I don’t hate myself. I’ve also learned that there are plenty of reasons to appreciate life even when things don’t seen to be going well in the moment.

–If I’m having a bad day at work, I remember that I’ve been in jobs I hated and that while the day may go south, I’m still lucky to have a job today that gives me the freedom to do work that makes me happy. I also know that I have a wife and children that I love coming home to.

–If I’m stuck in bed with a migraine or the flu, I can take comfort in knowing it could be — and has been — so much worse.

–If I’m feeling depressed — and my OCD ensures that I will from time to time — I can take comfort in knowing it doesn’t cripple me like it used to and I can still get through the day, live my life and see the mood for what it is — part of a chronic condition.

–If I’m feeling down about relationships that are on ice, I can take joy in knowing that there’s never a point of no return, especially when you’re willing to make amends and accept forgiveness.

–When I think I’m having the shittiest year ever, I stop and remember that most years are a mix of good and bad and that gives me the perspective to cool off my emotions.

–When something really bad happens, I know that people are always going to show up to help, and that it’s an extension of God’s Grace in my life.

–When I’m angry about something, I can always put on headphones and let some ferocious metal music squeeze the aggression out of me.

–If I’m frustrated with my program of recovery from addiction, I just remember how I felt when I was in the grip of the disease and the frustration becomes a lot smaller.

–If I feel like people around me are acting like idiots, I can recognize that they may just be having a bad day themselves and that it’s always better to watch an idiot than be one.

I could go on, but I think you get the point.

shine on

Change Is Pain, But Not Impossible

Last night’s 12-Step meeting reminded me of just how hard real change is. I used to measure change by who won the next election. I’ve realized that the only real change that matters is within myself. Naturally, it’s the hardest, most brutal kind of change to achieve.

Mood music:

[youtube http://www.youtube.com/watch?v=yqkxDgCIsOw&fs=1&hl=en_US&rel=0]

Last night’s AA Big Book reading focused on steps 8, 9 and 10:

8. Made a list of all persons we had harmed, and became willing to make amends to them all.

9. Made direct amends to such people wherever possible, except when to do so would injure them or others.

10. Continued to take personal inventory and when we were wrong promptly admitted it.

The first few steps were much easier for me. Admitting I was powerless over my addiction was a piece of cake. I was so desperate by then that the admission was the reason I walked into an OA meeting. It takes desperation to walk into a room full of people you’re certain are crazy fanatical freaks. That’s exactly how they came across. Then I realized I was just like them and was in just the right place. Nearly three years in, I’ve determined that we’re not crazy and we’re not freaks. We’re just TRYING to be honest with ourselves and those around us. It makes us uncomfortable and edgy because it’s much more natural for an addict to lie. People like us are weird and often intolerable.

Acknowledging a higher power was easy enough, because I’ve always believed in God. But this step brought me closer to realizing my relationship with God was all wrong. It was transactional in nature: “Please God, give me this or help me avoid that and I’ll be good…” Because of OCD that was raging out of control, I tried to control everything. I couldn’t comprehend what it meant to “Let go and let God.” Once I got to that point it got easier, though I still struggle with a bloated ego and smoldering will.

Still, that stuff is easy compared to steps 8-10. To go to people you’ve wronged is as hard as it gets. You come face to face with your shame and it’s like you’re standing naked in front of people who have every reason to throw eggs and nails at you. At least that’s how it feels in the beginning.

Step 9 has been especially vexing. There are some folks I can’t make amends with yet, though Lord knows I’ve tried.

I feel especially pained about my inability to heal the rift with my mother and various people on that side of the family. But it’s complicated. Very complicated. I’ve forgiven her for many things, but our relationship is like a jigsaw puzzle with a lot of missing pieces. Those pieces have a lot to do with boundaries and OCD triggers. It’s as much my fault as it is hers. But right now this is how it must be.

I wish I could make amends with the Marley family, but I can’t until they’re willing to accept that from me. I stabbed them in the gut pretty hard, so I’m not sure of what will happen there.

But there have been some unexpected gifts along the way.

Thanks to Facebook, I’ve been able to reconnect with people deep in my past and, while the need to make amends doesn’t always apply and the relationships can never be what they were, all have helped me heal. There’s Joy, Sean’s widow. She’s remarried with kids and has done a remarkable job of pushing on with her life. She dropped out of my world for nearly 14 years — right after Sean’s death — until recently. The contents of our exchange are private, but this much I can tell you: I was wrong all these years when I assumed  she hated my guts and wanted nothing more to do with me. I thought my old friend Dan Waters hated my guts too. But here we are, back in touch.

Miracles happen when you get out of your own way. But it sure can hurt like a bitch.

I’ve also half-assed these steps up to this point. There’s a much more rigorous process involved. You’re supposed to make a list and only approach certain people you’ve wronged after talking to your step-study sponsor. It hasn’t exactly worked out that way. I just started the Big Book study in January, so I have a long way to go.

It’s funny how, when we’re still in the grip of our addictions, we dream of the day when we’ll be clean. There’s a false expectation that all will be right with the world. But that’s never the case.

I’ve heard from a lot of addicts in recovery who say some of their worst moments as a human being came AFTER they got sober. 

That has definitely been the case for me. I’d like to think I’m a better man than I used to be, but I still screw up today. And when I do, the results are a spectacular mess.

But while I’m far from done with this stuff, I can already say I’m happier than I used to be.

Change is hard and painful, but when you can move closer to it despite that, the results are beyond comprehension.

I guess the old cliche — no pain, no gain — is true.