The OCD Diaries

June 10, 2011

The ‘Woe Is Me’ Disease

Funny thing about us OCD-addict types: When the going gets tough, we blame it on someone else. Call it the Woe Is Me Disease, where the sufferer is an eternal victim, forever screwed by everyone but his or her self.

Mood music:

http://youtu.be/-q-MorIES5I

It used to be that it was impossible for me to see the problems as my own. It was always the result of something someone else did to me or failed to do for me. Eventually my disease settled into a pattern where I blamed myself for everything, to the point where I just kept beating myself instead of doing what was necessary to move on with life.

My Mom, who passed many of her OCD tendencies on to me, is a textbook example of victim-based OCD. This isn’t meant as an insult or criticism. It’s simply the way the problem manifests itself in her.

She lacks the ability to see things she doesn’t like as the simple way of life. Nothing is ever her fault. It’s always someone else’s fault. She is the perfect victim. In her own mind, anyway.

Seeing yourself as a victim every time the going gets tough is probably one of the worst things you can do. It holds you back, keeps you from improving yourself and makes you look pathetic in the eyes of people who don’t understand where the emotion comes from.

I’m reminded of this after getting a message the other day from an old friend who has been fighting his own battle with OCD. I won’t tell you who he is, but I’ll share what he wrote to me, because he is choosing to do something about his problem:

I recently finished my PHP for my OCD. It was a great program and glad my wife recommended that I enroll. So many things helped me change my way of thinking. One of the most important things I learned was to find ways to be proactive and a problem solver (where before I would be reactive and put my head in the sand).

Additionally, I realized that I suffer from “victim” type of thinking (such as this is not fair, I can’t handle this, etc…) and I need to think more like a “survivor” (I can handle this). I could go on and on about what I learned. I still plan on writing a “guest” column about my experience. I haven’t had much time to put my thoughts down on paper and it’s really important to me to do justice to describing my PHP experience.

I have a huge folder of handouts that I need to organize. I do know that just because I went through the program doesn’t mean I’m miraculously cured. From here I on out, I have many “tools” in my toolbox to handle whatever life throws at me.

I’m looking forward to that guest column.

He’s also right that people like us are never miraculously cured. We simply gather up a series of coping tools and pull them out when we need the help.

As a result, we stop being victims and become, as he put it, survivors.

May 30, 2011

For Veterans, A Holiday Here and There Isn’t Enough

Funny thing about holidays where we honor veterans: Everyone puts those who have fought for our freedom on a pedestal for the day, then the next day some of us go back to treating the same people like garbage.

Mood music:

http://youtu.be/V-zqIS7vWbY

Flashback: September, 2010: I’m walking the streets of Brooklyn on a beautiful night, and a guy comes up to me. He has a hole in his head where his left eye used to be and burn scars up and down one arm.

I’m smoking a cigar, so he approaches me for a light. He tells me he was maimed in Afghanistan during military service and asks for some change so he can get a train to somewhere. He tells me he’s in New York looking for work and was stranded without money.

I give him the change from my pocket and then he’s gone.

Is he telling the truth? I have no idea, and I don’t really care. He just looked like a guy in pain who needed a few quarters to survive the next few hours, and that’s all that mattered at the time.

Flashback: Late April, 2011: I’m on Facebook one afternoon and I see a friend commenting that he’s disappointed that some of his friends have decided to “like” a page that makes fun of a fellow known in Haverhill, Mass., as Crazy Mike.

In any city there’s a guy like “Crazy Mike.” The stereotype is usually a long beard, ratty clothes and the fellow is usually living on the street. He talks aloud to no one in particular and falls asleep on playground equipment. People like to laugh at him.

A lot of these so-called crazy guys are homeless vets whose luck ran out somewhere between the battlefield and the hard re-entry into society.

After a few seconds of thinking this through (admittedly, a few seconds is never enough time to really think things through), my temper reaches full boil and I pound out a blog post called “Liking The Crazy Mike of Haverhill Page is Sad and Stupid.”

Discussion follows online, with a big question being if Crazy Mike was in Vietnam and, as a result, sick on the streets with Post-Traumatic Stress Disorder. One reader insists he is indeed a veteran, and that other homeless people keep stealing his medication. Someone else says she knew the family fairly well, and that Mike is not a veteran. He’s simply a guy who has a serious mental illness.

To me, it doesn’t matter if he was in Vietnam or not. Instead, two realities have my mind spinning like a top on fire.

One is that a lot of people assume he is a veteran, but treat him like shit anyway.

Another thing is that there are a lot of homeless who ARE military veterans, and most days we don’t give them more than a few seconds of thought before we walk on by.

It’s almost as if we honor them on holidays to make ourselves feel better about being the assholes we often are.

I say this as a guy who is admittedly one of those assholes. I’ve made my share of fun of people like this, and in the rear-view mirror, looking back at my own struggle with mental illness, it makes me feel ashamed. Back when fear, anxiety and addiction had me by the balls, I used to walk or drive the other way when these guys approached. It makes me the last guy on Earth who would be fit to judge others for poking fun at someone less fortunate.

It would be high-minded of me to say we need to do better for our veterans. But it’s been said so often it’s pretty much lost it’s meaning. We like to praise our veterans on Veterans Day, Memorial Day or July 4. But once the holiday is past, we go back to our normal behavior. Because they’re homeless and, as a result, they’re dirty, scary and unpleasant to those who have lived far more comfortable lives. And, don’t you know, we LOVE to judge people even though we know nothing about them.

Let’s face it, folks. We need more than the occasional holiday to treat these people the way they deserve to be treated.

And with that, we can all go back to our holiday cook-outs.

May 25, 2011

Fear of Coming Clean At Work

No, not my fear. I came clean about my fight with OCD a long time ago and my work colleagues are nothing but supportive. At this point, my life is an open book. But for those who are at the other end of the spectrum, I came across an article that might help.

Mood music:

http://youtu.be/bWsYuW9ULdU

It’s an item on About.com from Dr. Owen Kelly called “OCD and Work: Dealing With Employers.” There was a time when I lived in dread over whether or not to come clean. For one thing, there was a time when my disease was impacting my workmanship. I was a control freak in an environment where I had no control. That period of my life is best captured in a post called “One Of My Biggest Regrets.”

But that was long before I got the treatment I needed. Through years of extensive therapy, medication and tackling other disorders, I’m at a point of no return. I may backslide from time to time. I do, in fact. But there’s no going back to the insanity of 2000-2006. I’ve simply learned too much.

But for those just beginning to deal with their demons, the question of what to do about work is a big one — maybe even the biggest. You want to get well and do so in an honest way, but how many times have we heard about workplace discrimination? I hear about it all the time.

Dr. Kelly’s article is an excellent first step in knowing what to do.

He writes:

—

Choosing to disclose that you have OCD to a potential or current employer can be terrifying. People in this position often:

wonder if their potential or current employer will be supportive, reject them or even know or understand what OCD is
fear being passed over, fired or forced out through attrition
worry what people around the office will think
worry that they’ll regret their decision
fear being blacklisted within the industry they work
fear not being trusted with important tasks or responsibilities

It is important to know that if you are in this position, there is no right answer and that you need to weigh this decision for yourself.

—

The best part of the article is when he gets into what you should do IF YOU DECIDE TO COME CLEAN.

He writes:

—

If you decide that benefits outweigh the risks and you decide to disclose that you have OCD to a prospective or current employer, it will be up to you to make sure that your employer understands the nature and severity of your symptoms. This this doesn’t mean that you need to tell your boss everything — just what she needs to know and what accommodations you might need. If your employer does not fully understand the challenges associated with OCD, or doesn’t even know what it is, it may also be helpful to educate your employer about your illness. It may even be possible to enlist your health care provider to advocate for you.

Finally, check and see if your employer has retained the services of an employee assistance program or EAP. This service may be able to assist in or facilitate disclosure of your OCD to your employer.

—

An important part of the article is near the beginning, and deals with your rights. Kelly notes that it’s illegal to discriminate against someone because of a medical condition, including OCD. A final excerpt:

—

if you are otherwise qualified for the position, you cannot be denied employment simply because you have OCD. Although the law is quite clear on this, the actual experience of prospective and current employees with OCD can unfortunately be quite different.

However unfair, there is actually quite a bit of incentive for employers to terminate or pass on hiring someone who they know has a chronic illness — mental or physical. On average, their health costs will be higher; they will be absent more days; and they may even have to go on long-term disability leave — all of which impacts the bottom line.

Although it is illegal to terminate someone on the basis of a medical condition, there are many ways that employers can accomplish this indirectly. For example, the employer can give the employee progressively more undesirable tasks until to the employee decides to leave.

—

This article is something I wish I had back in the day. It’s probably the best direction I’ve seen anyone give people facing the question of disclosure.

I hope this helps. Good luck.

May 23, 2011

What’s YOUR Insanity?

“Paint a garbage can platinum and underneath, it’s still a garbage can.” Nikki Sixx

In Chapter 3 of the AA Big Book, we’re introduced to an alcoholic named Jim. He has a successful business until he starts drinking at age 35 in an attempt to dull a nervous tick, and everything goes to hell.

From pages 35-36:

“In a few years he became so violent when intoxicated that he had to be committed. On leaving the asylum he came into contact with us.

“We told him what we knew of alcoholism and the answer we had found. He made a beginning. His family was re-assembled, and he began to work as a salesman for the business he had lost through drinking. All went well for a time, but he failed to enlarge his spiritual life. To his consternation, he found himself drunk half a dozen times in rapid succession. On each of these occasions we worked with him, reviewing carefully what had happened. He agreed he was a real alcoholic and in a serious condition. He knew he faced another trip to the asylum if he kept on. Moreover, he would lose his family for whom he had a deep affection.

“Yet he got drunk again. We asked him to tell us exactly how it happened. This is his story: “I came to work on Tuesday morning. I remember I felt irritated that I had to be a salesman for a concern I once owned. I had a few words with the boss, but nothing serious. Then I decided to drive into the country and see one of my prospects for a car. On the way I felt hungry so I stopped at a roadside place where they have a bar. I had no intention of drinking. I just thought I would get a sandwich. I also had the notion that I might find a customer for a car at this place, which was familiar for I had been going to it for years. I had eaten there many times during the months I was sober. I sat down at a table and ordered a sandwich and a glass of milk. Still no thought of drinking. I ordered another sandwich and decided to have another glass of milk.

“Suddenly the thought crossed my mind that if I were to put an ounce of whiskey in my milk it couldn’t hurt me on a full stomach. I ordered a whiskey and poured it into the milk. I vaguely sensed I was not being any too smart, but felt reassured as I was taking the whiskey on a full stomach. The experiment went so well that I ordered another whiskey and poured it into more milk. That didn’t seem to bother me so I tried another.”

—

This is what we addicts call insanity. We get into this stupid idea that we can drink, eat or do drugs in perfect moderation like so-called normal people. That might mean trying to moderate drinking by ditching the hard stuff for just beer, or ditching red meat.

In the former case, you’re still getting smashed on a daily basis on beer. In the latter case — my case — you binge on everything that isn’t red meat until you explode.

At one point in my time as an out-of-control food addict, I decided to starve myself during the week and allow myself crazy binges Thursdays through Sundays. I looked forward to Thursdays because I could go into the Ground Round and order one of those colossal plates of nachos with every kind of junk dumped on top. That’s an appetizer meant to be shared between three or more people, but I would eat that myself, then chase it down with something healthy like a salad.

I’d carry on that way until the end of the weekend, and work out an hour-plus each day to balance it out.

It was but one variation of the insanity I had always practiced. As a teen and early 20-something I would binge on fast food for weeks and then starve myself for one or two weeks.

I usually binged in the car, trying to drive as I stuffed one arm into the bag of grease, flour, sugar and salt. That’s insanity too, because it doesn’t exactly promote safe driving.

It’s all about as crazy as putting whiskey in your milk and carrying on like you’re just drinking milk.

In the big picture, the problem isn’t the food, or the booze, or the drugs. It’s not necessarily the insanity of engaging in the binge.

Instead, the real problem — ground zero — is a deeper insanity that takes up residence in our souls, causing us the nervous ticks that make us do the stupid things we do. In the TV show “The West Wing,” recovered alcoholic Leo McGarry describes the nervous condition nicely:

[youtube http://www.youtube.com/watch?v=DUwm6WJRPIQ&fs=1&hl=en_US&rel=0]

We all have some form of insanity within us. Some learn to manage it without substances. Many more don’t.

Which leaves me with the question:

What’s your insanity, and what does it make you do?

May 14, 2011

Back Story Of THE OCD DIARIES

Since I’ve been adding new readers along the way, I always get questions about why I started this thing. I recently expanded the “about” section, and that’s a good starting point. But more of a back story is in order.

Mood music:

Before I started THE OCD DIARIES in December 2009 with a post about depression hitting me during the holidays, I had always toyed with the idea of doing this. The reason for wanting to was simple: The general public understands little about mental disorders like mine. People toss the OCD acronym around all the time, but to them it’s just the easy way of saying they have a Type-A personality.

Indeed, many Type-A people do have some form of OCD. But for a smaller segment of the population, myself included, it’s a debilitating disease that traps the sufferer in a web of fear, anxiety, and depression that leads to all kinds of addictive behavior. Which leads me to the next reason I wanted to do this.

My particular demons gave me a craving for anything that might dull the pain. For some it’s heroin or alcohol. I have gone through periods where I drank far too much, and I learned to like the various prescription pain meds a little too much. But the main addiction, the one that made my life completely unmanageable, was binge eating.

Most people refuse to acknowledge that as a legitimate addiction. The simple reason is that we all need food to survive and not the other things. Overeating won’t make you drunk or high, according to the conventional wisdom. In reality, when someone like me goes for a fix, it involves disgusting quantities of junk food that will literally leave you flopping around like any garden-variety junkie. Further evidence that this as an addiction lies in the fact that there’s a 12-Step program for compulsive over-eaters called Overeater’s Anonymous (OA). It’s essentially the same program as AA. I wanted to do my part to make people understand.

Did I worry that I might get fired from my job for outing myself like this? Sure. But something inside me was pushing me in this direction and I had to give in to my instincts. You could say it was a powerful OCD impulse that wasn’t going to quit until I did something about it.

I write a lot about my upbringing, my family and the daily challenges we all face because I still learn something each day about my condition and how I can always be better than I am. We all have things swirling around inside us that drive us to a certain kind of behavior, and covering all these things allows me to share what I’ve learned so others might find a way out of their own brand of Hell.

I’m nothing special.

Every one of us has a Cross to bear in life. Sometimes we learn to stand tall as we carry it. Other times we buckle under the weight and fall on our faces.

I just decided to be the one who talks about it.

Talking about it might help someone realize they’re not a freak and they’re not doomed to a life of pain.

If this helps one person, it’ll be worth it.

When I first started the blog, I laid out a back story so readers could see where I’ve been and how personal history affected my disorders. If you read the history, things I write in the present will probably make more sense.

With that in mind, I direct you to the following links:

The Long History of OCD

An OCD Christmas. The first entry, where I give an overview of how I got to crazy and found my way to sane.

The Bad Pill Kept Me from the Good Pill. How the drug Prednisone brought me to the brink, and how Prozac was part of my salvation.

The Crazy-Ass Guy in the Newsroom. Think you have troubles at work? You should see what people who worked with me went through.

The Freak and the Redhead: A Love Story. About the wife who saved my life in many ways.

Snowpocalypse and the Fear of Loss. The author remembers a time when fear of loss would cripple his mental capacities, and explains how he got over it — mostly.

The Ego OCD Built. The author admits to having an ego that sometimes swells beyond acceptable levels and that OCD is fuel for the fire. Go ahead. Laugh at him.

Fear Factor. The author describes years of living in a cell built by fear, how he broke free and why there’s no turning back.

Prozac Winter. The author discovers that winter makes his depression worse and that there’s a purely scientific explanation — and solution.

Have Fun with Your Therapist. Mental-illness sufferers often avoid therapists because the stigma around these “shrinks” is as thick as that of the disease. The author is here to explain why you shouldn’t fear them.

The Engine. To really understand how mental illness happens, let’s compare the brain to a machine.

Rest Redefined. The author finds that he gets the most relaxation from the things he once feared the most.

Outing Myself. The author on why he chose to “out” himself despite what other people might think.

Why Being a People Pleaser is Dumb. The author used to try very hard to please everybody and was hurt badly in the process. Here’s how he broke free and kept his soul intact.

The Addiction and the Damage Done

The Most Uncool Addiction. In this installment, the author opens up about the binge-eating disorder he tried to hide for years — and how he managed to bring it under control.

Edge of a Relapse. The author comes dangerously close to a relapse, but lives to fight another day.

The 12 Steps of Christmas. The author reviews the 12 Steps of Recovery and takes a personal inventory.

How to Play Your Addictions Like a Piano. The author admits that when an obsessive-compulsive person puts down the addiction that’s most self-destructive, a few smaller addictions rise up to fill the void. But what happens when the money runs out?

Regulating Addictive Food: A Lesson in Futility. As an obsessive-compulsive binge eater, the author feels it’s only proper that he weigh in on the notion that regulating junk food might help. Here’s why the answer is probably not.

The Liar’s Disease. The author reveals an uncomfortable truth about addicts like himself: We tend to have trouble telling the truth.

Portable Recovery. Though addiction will follow the junkie anywhere in the world, the author has discovered that recovery is just as portable.

Revere (Experiences with Addiction, Depression and Loss During The Younger Years)

Bridge Rats and Schoolyard Bullies. The author reviews the imperfections of childhood relationships in search of all his OCD triggers. Along the way, old bullies become friends and he realizes he was pretty damn stupid back then.

Lost Brothers. How the death of an older brother shaped the Hell that arrived later.

Marley and Me. The author describes the second older brother whose death hit harder than that of the first.

The Third Brother. Remembering Peter Sugarman, another adopted brother who died too early — but not before teaching the author some important lessons about life.

Revere Revisited.

Lessons from Dad. The author has learned some surprising lessons from Dad on how to control one’s mental demons.

The Basement. A photo from the old days in Revere spark some vivid flashbacks.

Addicted to Feeling Good. To kick off Lent, the author reflects on some of his dumber quests to feel good.

The lasting Impact of Crohn’s Disease. The author has lived most of his life with Crohn’s Disease and has developed a few quirks as a result.

The Tire and the Footlocker. The author opens up an old footlocker under the stairs and finds himself back in that old Revere basement.

Child of Metal

How Metal Saved Me. Why Heavy Metal music became a critical OCD coping tool.

Insanity to Recovery in 8 Songs or Less. The author shares some videos that together make a bitchin’ soundtrack for those who wrestle with mental illness and addiction. The first four cover the darkness. The next four cover the light.

Rockit Records Revisited. The author has mentioned Metal music as one of his most important coping tools for OCD and related disorders. Here’s a look at the year he got one of the best therapy sessions ever, simply by working in a cramped little record store.

Metal to Stick in Your Mental Microwave.

Man of God

The Better Angels of My Nature. Why I let Christ in my life.

The Rat in the Church Pew. The author has written much about his Faith as a key to overcoming mental illness. But as this post illustrates, he still has a long way to go in his spiritual development.

Absolute Power Corrupts Absolutely. The author goes to Church and comes away with a strange feeling.

Running from Sin, Running With Scissors. The author writes an open letter to the RCIA Class of 2010 about Faith as a journey, not a destination. He warns that addiction, rage and other bad behavior won’t disappear the second water is dropped over their heads.

Forgiveness is a Bitch. Seeking and giving forgiveness is essential for someone in recovery. But it’s often seen as a green light for more abuse.

Pain in the Lent. The author gives a progress report on the Lenten sacrifices. It aint pretty.

April 29, 2011

OCD and ADHD Linked? Maybe

I recently wrote about our challenges with Duncan and how I often curse myself for a lack of patience with him, given my own history with OCD. This morning I came across a column from Dr. Keith Ablow that might explain a lot.

Mood music (Still some coding weirdness with the video embedding, but the music works):

Let’s start with a few paragraphs from Ablow’s column:

Obsessive Compulsive Disorder (OCD) and Attention Deficit/Hyperactivity Disorder (ADHD) are very different conditions, according to the Diagnostic and Statistical Manual—the “bible” of psychiatric diagnoses published by the American Psychiatric Association. Yet, my clinical experience tells me they may be linked.

OCD is characterized by unwanted and intrusive thoughts and behaviors. A patient might complain that she “can’t stop thinking” about germs and, therefore, feels compelled to wash her hands dozens of times a day. It is as though the mind or brain is doing senseless laps around a track the person very much wants to stop running.

ADHD is characterized in part by distractibility, forgetfulness and trouble organizing. A patient might complain she “can’t focus” and never seems to finish a task. It is as if the mind cannot stay on course and complete even one lap around the track the person very much wants to run.

Different medicines (in addition to various forms of therapy) are used to treat OCD and ADHD. Obsessions and compulsions seem to yield to medications like Prozac or Effexor that boost serotonin and norepinephrine in the brain. ADHD seems to improve more with stimulants, like Ritalin or Adderall.

But for several of my patients, their obsessions and compulsions seem to have developed as a counterproductive way of “dealing with” preexisting and severe attention deficit problems. Since they couldn’t select what to pay attention to, and since that meant their focus shifted painfully from one thing to another to another, their brains seem to have dropped anchor into rigid, repetitive thought and behaviors (obsessions and compulsions)—so that they began to think or do the same thing again and again and again, in order to stop the very distressing sense of drifting aimlessly.

Naturally, I find myself thinking back to childhood for evidence. I’ve written a lot about my childhood in this blog, including the parts where I believe the seeds of mental disorder were planted.

But it never occurred to me to scour the brain for times when I may have shown some ADHD tendencies.

Looking back, it’s still hard to know for sure.

I certainly had trouble focusing. I was one of the kids who went to a special class for kids who had trouble focusing. I was always daydreaming and staring out the window, but people with OCD do that, too. It’s just that we OCD types have brain-wrenching problems playing over and over in our minds. It’s not about dreams of flying pigs and fluffy clouds. Not that those things go through the mind of someone with ADHD.

I also used to imagine myself in certain scenes from movies and comic books, especially the Superman and Star Wars genres. I wrote about this in a previous post called “Hiding in Movies.” One time, in third grade, I got so carried away that I started to loudly hum the then-new theme to “Star Trek: The Motion Picture,” which had come out that year.

“Who’s humming?” the teacher asked. In unison, half the class answered, “Bill!”

Was that some ADHD working within me? Perhaps. But I’ll never know for sure. The time to determine it was in the 1970s. We obviously can’t go back there.

I always chalked up my elementary school tutors as byproducts of all the school I missed because of the Crohn’s Disease. I needed a lot of help to keep from repeating grades 2, 3 and 4.

Fast forward to 2011, where I’m a parent of two kids. One of them, Duncan, has something going on.

The boy has a heart of gold and a razor-sharp wit, but as I’ve written before, winter messes with his mind as badly as it does mine. He’s always had his quirks, as we all do. Some of them are disruptive enough that we decided to have him evaluated. My family history alone was reason enough to do it.

The meeting in February was fascinating, frustrating, confusing and illuminating all at once.

The doctor asked Erin about her family history, then turned his glare to me. Apparently the paperwork I filled out set off most of the alarm bells in this process. I knew it was coming. I expected it.

He asked about my brother’s death, my childhood illness, the state ofmy parents’ mental health back in the day and how it all shaped the addictive behavior and OCD I would struggle with as an adult. My sister’s struggles also came up.

After that line of questioning, the doctor calmly told us Duncan fit all the textbook criteria of someone with ADHD. He also has some serious trouble with fine motor skills, which helps explain his penmanship.

We’ve long had our suspicions on both counts. But to hear it from a doctor’s mouth was something else.

We talked a lot about how family dynamics could really shape a kid’s struggles and how various mental disorders end up manifesting themselves. My family dynamic growing up took the mental ticks in my head and molded them into something very dark.

The doctor talked about medication. The good news: The stuff they prescribe for ADHD is extremely effective in correcting the brain’s wiring. For a few minutes, I thought that would be the road we were taking.

I wasn’t afraid.

I’ve been on Prozac for four years and know better than most that it works without wiping away my feelings and personality the way I once feared it would. One of our relatives recently worried aloud that medication would kill Duncan’s personality and turn him into something of a robot.

It’s a fair concern, but I know better. I’ve done my homework and used myself as a test case.

But what the doctor said next shattered any idea of medication — for now, at least.

He said that Duncan’s ADHD-like symptoms could also be the very beginnings of something much different — bipolar disorder, depression, maybe even OCD.

ADHD medicines can make those other things much, much worse further down the line.

At this point, we have Duncan seeing a therapist we’re very happy with. Spring is here, so some of his quirks are easing off a bit.

Dr. Ablow’s column doesn’t change the game for us. But it does give us something more to think about.

April 23, 2011

‘Binge Eating? Come On, Man’

Every now and then, someone expresses shock at my classifying a compulsive binge eating disorder as addictive behavior. So it was when an acquaintance in the infosec world contacted me this morning.

Mood music:

[spotify:track:0ydzdWYWIFlGBurhjEXwit]

Rather than run the entire message verbatim, I’m going to address certain chunks. His text is in italics, followed my my responses. First, I want to point out that I like this guy. He does great work in our industry. I also think his observations are perfectly reasonable.

First, he questioned the short “about” blurb you see at the end of each post:

“Welcome to THE OCD DIARIES, the blog that kicks fear, anxiety, depression and addiction in the teeth. It’s written by Bill Brenner, a man who went through hell, saw the light and lived to tell about it.”

To that, he said:

With anxiety and depression I certainly understand, but when I think serious addictions I was thinking some sort of drug abuse – in fact heroin is what popped into my head. Alcohol also a possibility… but binge eating? Come on man. Everyone has a hard time knowing when to say when to junk food, Shit, I gotta throw it in the trash sometimes so I don’t eat it all.

For those who haven’t dealt with food as an addictive substance, his skepticism is understandable. It’s a very common skepticism, which is one of the reasons I blog about it. There are misconceptions to shoot down. So let me explain it this way:

Specifically, I’m addicted to flour and sugar. Like an alcoholic or drug addict, I would feel the itch for it and it would drive me insane until I got my fix.

That didn’t merely involve eating a couple doughnuts and regretting it later. It meant consuming as much as I absolutely could. It reached the point where it severely disrupted my life. In the post “Anatomy of a Binge,” I describe a day in the life of me back when I was in the grip of the spell. When you live from binge to binge, little else in life matters. Work suffers. Family suffers. That’s the difference between destructive, addictive behavior and simply having the tendency to eat a little too much.

I’ve learned to control it the same way more traditional addicts have done it: By doing a 12-Step program.

People are always going to have trouble buying the notion that this is a legitimate addiction. I can’t change everyone’s mind. I only know that this is how it is for me and many other people who I have met, and if someone who compulsively binge eats will find it in them to get help after reading some of this blog, that’s all that matters to me.

One more point about addiction: My personal experience is that the behavior is merely a byproduct of a bigger, more insidious problem. I like to call it the hole in my soul, complicated by a sometimes debilitating mental disorder called OCD.

From my perspective, the OCD — mixed with a history of close friends dying, serious childhood illness and constant tragedy in the family — drove me to my addiction. The combination of all these things is the “hell” I speak of in the “about” blurb.

Everyone has their struggles. Everyone has their own version of hell. This was simply mine. I don’t lament it. I love the life I have today and I’m not the same man I was even five years ago. As far as I’m concerned, I owe it to my maker to share where I’ve been so others know they are not alone or without hope.

Quick question, have you always had your faith — reason I ask is because 2 people I know were so heavily addicted and the bible was how they escaped their addiction. I found it to be one extreme to another.. they became fundamentalist in a way… I felt like I’d lost my “mates” — but on the same token I’m of course stoked that they will continue to walk the earth… I just wish there was a middle ground.

I’ve always believed in God, but my faith has really deepened in recent years. I don’t tell people what they should or should not believe. All I ask of people is that they be kind to others and honest with themselves.

I wholeheartedly agree there are those who take it way too far, to the point that it is just another addictive, compulsive behavior.

Some folks cling to their 12-Step program so tightly that their addictive behavior latches on to the program itself. In my opinion, this can get unhealthy. The same thing applies to religion.

To find recovery in Overeater’s Anonymous, the only requirement is to want to stop eating compulsively. It’s very simple. There is no “OA diet.” But there are a few different food plans people choose from. One is based on a “Dignity of Choice” pamphlet that outlines a few different plans. Then there’s the so-called “Grey Sheet” plan (included among the options in “Dignity of Choice”) a lot of recovering food addicts cling to like a passage from The Bible.

For them (not everyone, but quite a few people), there IS NO OTHER WAY. If you’re not following the food plan outlined there, you are not abstinent. There’s also the mindset that you HAVE TO ABSTAIN FROM FLOUR AND SUGAR and have nothing in between meals to be abstinent. Eat an apple in between lunch and dinner and you break your abstinence and have to start over.

To me, this is an extreme that causes a lot of people to fail. It pisses me off when someone following the strictest plan tells someone they’re not being abstinent if they’re doing their own plan differently.

For the record, I don’t eat flour or sugar, and I don’t eat in between meals. I have to have it this way because the defect in my brain approaches anything in between as an invitation to binge. Flour and sugar, mixed together, had the same effect on me as heroin has on the more traditional junkie.

But not everyone can do it that way. There are many reasons for someone to do it differently. If you have diabetes, for example, following my exact food plan could be bad, maybe even lethal.

I also feel that if an apple between meals keeps you from binge eating, that’s what you do. If the more extreme among us tell you you’re not abstinent if you do that, they’re wrong.

In my view, folks who get that way become addicts of a different sort. The compulsive behavior centers around the program itself.

With faith, all that matters to me is that I have beliefs that sustain me. Everyone must walk their own road on that one.

I hope this was a decent explanation.

Thanks for the feedback.

April 20, 2011

Wanted: Psychiatric Specialists in the Emergency Room

A friend directed me toward a disturbing story on NPR’s website about the mentally ill languishing in ERs.

Mood music:

[youtube http://www.youtube.com/watch?v=NkJOZOOXJWk&fs=1&hl=en_US&rel=0]

Here’s the first few paragraphs of the report by Jenny Gold:

As he lay on a gurney in the emergency department of Memorial Hospital of Rhode Island, Erik grew increasingly upset. He had called the police to report a theft from his apartment, but wound up being taken to the hospital.

The ER staff quickly determined that Erik, 40, who has been diagnosed with schizoaffective disorder and PTSD, needed urgent psychiatric care, but there wasn’t much they could do.

Like many hospitals, Memorial doesn’t have a psychiatric unit, and all of the psychiatric units in the nearby facilities were full. Erik, a bright, articulate and devoutly religious man, had to wait nearly two days on a gurney in the ER before he could be transferred.

Mentally ill patients often languish in hospital emergency rooms for several days, sometimes longer, before they can be moved to a psychiatric unit or hospital. At most, they get drugs but little counseling, and the environment is often harsh.

A few thoughts on this:

–This is disturbing as hell when you consider the fact that when you listen to the phone recording from just about every therapist’s office, you are directed to the nearest emergency room in a crisis situation. Someone in a desperate state goes to the ER as directed only to find no help.

–The typical ER is an infuriating place to be because you almost always wait for hours unless you’ve been brought in by ambulance or you have blood pouring out all over the floor. I don’t necessarily blame ER staff for this. They never have enough resources. Some will debate me on that, but I’ve been in enough ERs to make the observation.

In the final analysis, I think the main responsibility for fixing this problem starts with the upper-level hospital administrators and boards of directors. They need to make it a priority to have emergency assistance for people with mental health emergencies.

If there’s a good reason they can’t do this, and I doubt there is, then mine and other therapists need to stop telling people to go to the emergency room.

April 20, 2011

Reinforcing the Stigma Instead of Breaking It

Lost in my most recent tirade against employers who discriminate against the mentally ill is a point that’s very important: People like us have a responsibility to prove we’re up to the challenges we seek.

Mood music:

[youtube http://www.youtube.com/watch?v=QanVuQIXU5s&fs=1&hl=en_US&rel=0]

In my opinion, employers have no legal right to deny someone a job simply because they were diagnosed with a mental illness. They do, however, have the right to pass over a candidate who doesn’t seem up to the job.

My friend Danielle Goodwin shared a personal example of someone denying her a job because she was honest about what she had:

I interviewed several times (making the cut each time) for a national-level position worth some big bucks last year. They used emotional intelligence testing and the whole nine yards. I passed everything.

I went for my final interview with the president of the company (all of the lower committees had recommended me to be hired). Everyone had told me the guy asks stuff that no one else has ever asked you and to be totally honest because he can spot a liar…so he asks me piercing, direct questions about my childhood abuse. I was completely honest with him, and I found out the next day he told everyone else everything I told him and that because I was hurt as a child, I definitely couldn’t function in their company.

What a jerk! He had the right, I guess, since it was just an interview…but why dig in so deep and ask me those things if you’re just going to hold it against me without ever seeing my work product and ethic.

If anything, adult children like me work harder, work more efficiently, and produce higher quality work according to the research.

The guy who interviewed her, told everyone about the conversation and turned her down was an asshole. Pure and simple. A lawyer could have had a field day picking that bastard to pieces.

At the other end of the spectrum is this comment from Beth Horne, president and CEO of The Horne Agency, a marketing and advertising firm. She has lived this from both sides, as the mental illness sufferer and as an employer. She wrote the following via the United States Mental Health Professionals group on LinkedIn:

I was diagnosed with Bipolar 2 twenty years ago. I received treatment and have been stable for years, thanks to excellent therapy, medication and education. Before returning to school for my PhD in Psychology, I worked in Marketing/Advertising for several large media companies before opening my own advertising agency. I was open about my diagnosis with my employers during my interview process, and it never hindered me from being hired. In fact, I never interviewed for a job I did not get, due to my work record, resume and references.

I think that my work performance more than made up for any issues I may have had regarding my disorder, such as sometimes having periods of depression or getting a bit manic when life changes occurred. I worked very hard NOT to let them affect my work performance or reduce my ability to generate revenue for my company.

However, I have been in management with these companies and had employees with mental issues who did not take care of themselves and they became liabilities to the company and had to be let go. Some would refuse to take their medication and attend therapy, some would miss work continually or be so over-medicated they were in a constant stupor, unable to perform their duties. I had one woman who came into the office in such a manic state I had to ask her to stay in her office until she could have her husband take her to her doctor, and to please refrain from taking any sales calls, for fear of her ruining client relations.

If someone knows they have a mental issue/disorder, it is a personal choice whether or not to accept their diagnosis and get help and follow their treatment. Is this always easy? NO! But if they are to function in the work environment, it is their responsibility to do anything and everything in their power to stay as healthy as possible. If this is not possible for them, then it is time to look into disability.

Employers need to understand that not everyone with a diagnosis of a mental illness is like another…there are people with bipolar disorder who have little problem going on with their daily routine with just therapy and medication, while others find it impossible to blend into the work environment. I use bipolar disorder as just one example, but there are many others, as we all are aware. I have a mother who has a mild form of OCD and is a supervisor at a hospital. What better profession could there be for someone who will always be strict about following rules, cleanliness and excellent patient care than an RN? Or like my brother, who also has the same issue, works in IT?

Both are successful and well-adjusted, and their coworkers probably have no idea they have any mental problems whatsoever. So before they judge and dismiss a potential employee because of ignorance, they should look at the person as a whole and not just their diagnosis.

Beth, you are so right. Thanks for sharing.

Like Beth, I’ve been judged by my workmanship and not by any mental health issues I’ve disclosed. That has been the case for me in every job I’ve ever had.

I’m very fortunate.

There have also been times in past jobs where my workmanship suffered because I wasn’t taking care of myself. I was refusing to even consider therapy or medication, and I sank lower and lower.

I was reinforcing the stigma instead of breaking it.

Today I succeed because I refuse to let the struggles render me useless. Like Danielle, I fight harder and longer, and I never give up.

Better to be part of the solution than the problem.

April 20, 2011

The World of “Crazy Mike” (Knowing Who You Pick On)

Got a lot of comments on yesterday’s post about the mentally ill guy in Haverhill people call “Crazy Mike.” Read on and you’ll know him better.

Mood music:

[youtube http://www.youtube.com/watch?v=KYyK-ZvpR_M&fs=1&hl=en_US&rel=0]

The most insight on Mike comes from Katherine Doot, an old friend of Erin’s and recent discoverer of this blog. She lives in Arizona now, but as a Haverhill native she got to know Mike pretty well. Here’s what she had to say:

Mike in fact is a Vietnam veteran who does in fact have SEVERE PTSD, or post traumatic stress disorder. He has medication that helps, when he can take it, but as I was told, the medication is often stolen from him.

Sadly this poor man lives in his mind every day reliving the horrors that he saw in Vietnam and cannot escape.

I had run-ins with him when I lived in Haverhill. Was I scared? Of course, but the man deserves respect for going to fight in a war in the name of our country. He deserves compassion for the nightmare that is his reality, and just maybe a bit of sympathy because of the lack of all of the above.

I work at an office that serves veterans, and at this office I have seen many of the Vietnam vets, most in better condition than Mike, but most have some sort of mental condition that stems from their war time. I feel sorry for what these brave soldiers gave up. Every chance I get, I make sure to take a moment, to shake their hands, and to say thank you for doing what they did. Sadly most of them are shocked by the simple words, and it brings me to tears every time.

As I said yesterday, I’m lucky. I struggled for years with crippling mental illness, but that was nothing compared to this.

This whole affair has also reminded me of all the homeless veterans I’ve seen in Haverhill and Revere over the years.

There’s always evidence that the guy on the street is a veteran. There are the service tattoos and the jacket patches. Many of them saw things that were hard to live with, and they were rendered mentally ill. Instead of getting help, they wound up on the street because they couldn’t hold a job or stay off drugs and booze.

Because they’re homeless and, as a result, they’re dirty, scary and unpleasant to those who have lived far more comfortable lives. And, don’t you know, we LOVE to judge people even though we know nothing about them.

I single myself out for ridicule, because back when fear, anxiety and addiction had me by the balls, I used to walk or drive the other way when these guys approached.

I’ve had my struggles. We all have. But I have no idea what it’s like to be on a battlefield.

I do know that a lot of people — good people who have sacrificed for God, country and family — have taken tragic turns in the line of duty. It’ll always be this way because life’s unfair.

Do these guys deserve better from the rest of us? You bet your ass they do. Including “Crazy Mike.”

When someone is on the street and hungry, we like to say they did it to themselves. Or we say we gotta help them and then do nothing. I’ve done both.

They did drugs. They stole and lied to people.

But the fortunes of man are never, ever so simple.

There’s always something in the history of each of us that shapes the decisions we make and how we live otherwise. I’ve made many bad choices in my day. But God’s Grace has carried me through.

May the vets on the street find that same Grace.

I bunked with a Vietnam veteran who has PTSD last year when I was on team for a Cursillo retreat.

He’s been through the wringer over the years. He saw terrible things in Vietnam, and he came home to people who were spitting on soldiers instead of praising and thanking them.

I thought it was appropriate that a guy with PTSD would be rooming with Mr. OCD. We had a lot of laughs over that.

But here’s the thing: This guy doesn’t bitch about his lot in life. He’s retired, but he spends his days helping fellow veterans.

And he’s active with the Cursillo movement.

The tragedy of service bent him in every direction. But it didn’t break him.

There’s hope for all of us.

Even “Crazy Mike.” He walks the streets talking to himself today. But with the right kind of help, who knows what kind of goodness he may be capable of.