A Bedside Conversation with Dad

I’ve been spending a lot of time with my father, who is in hospice care. One of the twisted blessings of him being near the end of his life is that he’s opening up more than he ever has. One such conversation goes to show that things you see as a kid don’t always match up with what’s really going on.

Mood music:

Like a lot of families, we’ve hit our financial walls over the years and a few years ago I had to ask my father for help. That was a killer, because I’ve always taken pride in making things work without having to do that. It was humbling.

I’m a lot like the character Quint in JAWS in that I suffer from working-class hero syndrome. One of the many excellent lines in that movie was when Hooper told Quint to knock off the working-class hero crap, after Quint kept picking on Hooper for not getting his hands dirty enough.

In my case, I like to believe that adults should be able to make a living without any help from family and friends. In a financial rut? You figure it out and avoid asking your parents for help at all costs. I’ve looked down on people who have done that in the past. I described one case as someone using their father like a piggy bank.

To me, asking Dad for help always meant failure.

I think some of that attitude comes from the fact that I leaned on my father’s financial assistance a lot in my 20s. When my 1981 Mercury Marquis finally died a painful death at the hands of its abusive driver, I went to Dad and nagged for a new car. I got one — a 1985 Chevy Monte Carlo.

I look back on that sort of thing and realize what a burden that was on my father. When I got married and settled into my 30s, I vowed never to bother my father for money again. I would manage on my own at all costs.

For the most part, we have. I owe most of that fact to Erin, who is far smarter about finances than I am.

So in the room at hospice, Dad and I discussed the delicate balance of paying for the kids’ private school and keeping the mortgage up to date and food on the table. He floored me with this statement:

“I know what it’s like. There were a lot of those situations when you guys were kids,” he said.

What? I always assumed that he was always on top of the family finances and that paying for things was never a problem.

But thinking back on it all, it makes perfect sense. I just think of the medical bills alone the three of us kids wracked up in the 1970s and ’80s. It had to have been staggering, between my multiple hospital stays for Crohn’s Disease, Michael’s asthma treatment and Wendi’s hospitalizations for depression.

My father practically lived at his business, but I always assumed it was because he preferred to be there than at home. I still believe that to a point. But I think a lot of it also had to do with making ends meet in a world gone mad.

Since I always assumed we were well off when I was a kid, my father clearly did a good job of shielding us from the financial ugliness. So I thanked him.

“No problem. I love ya,” he said.

Love you too, Dad.

Bill, Gerry, Wendi, and Michael BrennerMe with Dad, Wendi and Michael, Christmas Eve 1982.

My Introduction to Hospice Care

I’ve heard much about the blessings of hospice care, but I hadn’t seen it firsthand until now. After four years of illness, my father has decided he’s fought long enough and has chosen hospice care for the endgame.

Mood music:

https://youtu.be/DfStujGaf0E

We visited him Saturday, and he looked and sounded better than he has in a long, long time. He was alert, his talking was clear, and he was smiling the whole time. He’s made his decision and is at peace.

Now we wait for nature to take its course. It could be weeks or months.

I’ve decided to spend a couple days a week working from his bedside. I see no reason to put my work aside, and he would frown upon it. Since I spent much of my childhood hanging around him as he worked, the turnabout seems appropriate.

And while I’m there, I’m going to ask him for stories about the past. I was there for 45 years of it, but I want his unfiltered perspective. I also think he’ll enjoy it.

This is going to be an interesting adventure.

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Cancer’s Silver Lining

These days it’s sobering for me to think of all the cancer patients I know personally. I’ve written about my aunt and one of my hometown friends. I’ve known others, as well. I’ve never had cancer, but it’s become a source of anxiety in my life.

 Mood music:

[spotify:track:2ql32BJPN3hnyboml4JfER]

Along with knowing many who battle it, I’m at a higher risk of developing colon cancer one of these days, thanks to nearly a lifetime of Crohn’s Disease. I have to get a colonoscopy every couple of years to keep an eye on things, which gives me confidence that if it ever arrives, we’ll catch it early. But it’s given me a somewhat fatalistic outlook: I assume it’s coming eventually.

NPR recommends asking these two questions of your doctor before having your colonoscopy.

That said, I’ve seen a silver lining around this disease. Simply put, it tends to bring out the best in those who suffer from it.

I never hear the people I know with cancer grousing about it. There’s no “woe is me” going on. No bitterness. Just gratitude. They seem to appreciate what they have a lot more and spread that gratefulness around. I have no doubt they still experience plenty of anxiety and awful feelings out of public view. But that’s what makes their public face so inspiring. They can still show us how to be strong, even though they are exhausted and in a hundred kinds of pain.

I’m thinking about this because my Haverhill friend announced on Facebook that she’s decided to get hospice care. Renee Pelletier Costa often posts her messages from bed, because all the chemo and radiation saps her energy. But everything she posts is about how lucky she is and how much support and love she has.

Her battle is getting tougher, and she has decided on hospice care not because she sees the end in sight, but because the services offered will allow her to cast aside the chemo treatments and focus on healthier daily living. She wants to be able to do more for her family and get more quality from the time she spends with them, and this is how she can do that.

“I have no plans of dying anytime soon,” she wrote on Facebook. “Only God knows.”

Indeed, it’s not about dying. It’s about living. It’s more useful to focus on the latter, because when you get down to it, none of us really knows how much time we have.

Thanks for the lesson, Renee.

Related links:

A Tale Of Two C-Words

Beyond Boing Boing: Xeni Jardin Inspires Me

I Don’t Care About Your Bra Color, Where You Put Your Purse Or Where You’re Going for 15 Months

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