I have a major case of OCD Fidget Syndrome today. It started with an 8 a.m. meeting in work and seems to have gotten worse as the morning has dragged on.
In the meeting I noticed I kept swiveling my chair back and forth and changing positions. I kept tugging at my clothes. I must have gotten pretty slick about it, because people didn’t seem to notice.
Then we had a small editorial meeting and the itch started to feel more intense. Doodling on a piece of paper as we discussed business kept me from flailing wildly.
It doesn’t take rocket science to figure out what my problem is. Quitting smoking cold turkey Friday night is having the expected effect. It’s all I can do not to smoke. From there, the urge to binge eat is high.
I’m not going to do either of those things, though. I’m strong enough and I know I’ll feel better in a few days.
The key for now is to chew lots of gum so my sharp tongue doesn’t fly out of my mouth and slash whoever is unfortunate enough to get under my skin.
This afternoon I’m doing a site visit with some old friends in the security community. Wish them luck. đ
Here was the question, as posed to me on Facebook:
“Bill, do you think prednisone had anything to do with your OCD? You are the second person I know to have Crohn’s and depression, I have taken the drug in the past and it definitely messed with me mentally.”
The short answer is that I don’t know. I’m not a doctor and I can’t speculate on scientific questions I know nothing about. All I have are scientifically unsupported theories based on personal experience. I’m willing to explore the question from that perspective.
Of this I have no doubt:
Prednisone had brutal side effects that linger to this day. It damaged my vision, making glasses necessary at all times. It sparked migraines that still come and go. It gave me mood swings that have never really left me. And it had plenty to do with the binge-eating habit that has hounded me as an adult.
Prednisone does an excellent job of cooling down a Chronâs flare up. If not for the drug, chances are pretty good I wouldnât be here right now. More than once the disease got so bad the doctorâs were talking about removing my colon and tossing it in the trash. Each time, the medication brought me back from the brink.
But there was a heavy price â literally and figuratively.
The drug quadrupled my appetite, which was already in overdrive because of the food restrictions imposed upon me during times of illness.
It corrupted my relationship with food forever.
But I can’t say it was the cause of me developing OCD. There are many reasons I developed the disorder. Prednisone may have had a role, but I’ll never know for sure.
But that’s fine with me.
At this point, it doesn’t matter how I got it. I have it, and the best I can do is manage it with all my coping tools, with extra help from Prozac and the 12 Steps of Recovery, which I use to control the addictive behaviors.
You’ve heard the sorry old tale of the addict who cleaned up from the addiction that made his life unmanageable, only to pick up three more vices. That’s me. Take the surprise Erin got when opening my work bag.
Mood music:
She was cleaning and found earphones that belonged to me. She unzipped a front compartment in my laptop bag to put them away and had the unpleasant shock of discovering where I’d been hiding all my smoking products.
Everyone knows I like cigars. What people don’t know — and what Erin discovered — is that I’ve been sneaking cigarettes, too. Two packs were hidden in the pocket.
She took it better than I expected. I probably deserved a far harsher reaction. But she knows how addictions make someone like me tick. Instead, she talked me through the things I might be able to do to replace this crutch.
I agreed to stop smoking immediately — the cigarettes and cigars. And you know what? I’m pissed off right now. Not at Erin, but at my lot in life. I can’t seem to do anything in moderation, and so I have to put everything down.
I resent not being able to have vices. It makes me want to put my fist through a wall.
It’s nobody’s fault. It’s simply a problem with how my brain ticks. This is just the latest in a big shift I resolved to take three years ago when my binge eating compulsion brought me to my knees.
When you give up your worst addiction, you go looking for crutches to help you through. In the first year of not binge eating, I used alcohol as a crutch. Then I put that down, too. I picked up cigars, and, more recently, cigarettes.
If you think that’s pathetic, that’s because it is.
As I write this, I’m on day three without my smokes. I’m pretty fucking irritable. Nicotine cravings have nothing to do with it.
Like I said, I resent having to give up all my vices.
Coffee is all that’s left.
If you think I’m giving that up, you’re out of your fucking mind.
My initial reaction to that was irritation. Too fucking bad, I thought. So sorry I allowed Mr. Sunshine to take a sabbatical. How inconvenient for everyone.
After a few minutes of that, I realized I was being a prick.
People simply care about me and they are worried.
Thank you for caring. Sorry for being a prick.
I guess it has been a long, rough road. I’ve been back and forth to the rehab center each week, and it’s an hour from my home and my office. Seeing Dad in the wheelchair, plainly depressed, has had a rub-off depressive effect. I know how hellish the inactivity is for him, because he passed that trait down to me.
Meantime, I’m keeping it full steam ahead with my own work. And it’s taking all I have to keep from sliding back into binging.
Naturally, trying not to binge means I’ve picked up another destructive crutch. I put that crutch down on Friday, and while it’s the right thing to do, I’m resentful as Hell about it. More on that tomorrow.
The bottom line is that I am not a sunny guy right now. But don’t worry. I’ll be fine. This is life, and despite all the toil and trauma, I am a lot better at this shit than I used to be.
In the meantime, thanks for being patient and caring. I do appreciate it.
I’m in my therapist’s office, going over the things he routinely asks about to make sure I’m playing with a full deck. He asks if I’ve talked to mom recently. No, I tell him. But, I expect to see her this weekend — the first time in two years.
Mood music:
He asks if I’m nervous about it. To my surprise as well as his, I tell him I’m not — and I actually mean it.
I won’t repeat all the background of what happened between my mother and me. You can get the back story by reading an earlier post called “The Mommy Problem.”
Let’s just focus on the present…
The last time I saw her was the summer of 2009. I met with her for lunch and told her all about my treatment for OCD and how I was in a 12-Step Program for the binge eating disorder. She seemed to get where I was coming from. I was certain this was the start of the healing.
Then she sent an e-mail a week later asking when she was going to see her grandchildren. I told her Erin needed more time but I was ready to sit down with Bob on my own. I expected heâd sit there and call me every name in the book and tell me how much I had hurt the family, and I was ready to just sit there and take it. He was entitled to that.
But they were having none of that.
My mother sent another e-mail suggesting I was whipped and controlled by my wife, and that I was the laughingstock of the family as a result. Back to square one.
That was in August 2009. We havenât spoken since.
So why am I calm about the expected Saturday encounter? I guess it’s because I feel comfortable in my own skin and I feel like I’ve done a lot of hard soul searching in the five years since our combined mental illnesses imploded the relationship and took a few people with it.
I’ve taken it to the confession booth at church too many times to count. I tell the priests I wrestle with the whole “Honor thy mother and father” commandment. I’m always told that honor thy mother and father doesn’t mean sit there as you’re repeatedly run over by a tank.
I did make a big effort at reconciliation two years ago. I even connected with her on Facebook, for heaven’s sake. When I realized my efforts were going to fail, I de-friended and then blocked her from my profile.
Looking at the whole sorry affair, I still think she did the best she could with the tools she had. The problem is that she’s really lacking in the tool department, mainly because in her mind she has no problem. She’s a victim. Pure and simple.
We often look at abusive relationships in black and white. Thereâs the abuser and the victim. But itâs never that simple.
I forgave my mother a long time ago for the darker events of my childhood. I doubt I would have done much better in her shoes. Her marriage to my father was probably doomed from the start, and the break-up was full of rancor. My brother and I were sick a lot, and one of us didnât make it.
I didnât fully appreciate what a body blow that was until I became a parent. After Michael died, she became a suffocating force in my life. I did the same to my own kids until I started dealing with the OCD.
I hold nothing against her. Thereâs a lot I can get into about this, but the reality is that this relationship is a casualty of mental illness and addiction. This one canât be repaired so easily, because much of my OCD and addictive behavior comes directly from her.
For the sake of my immediate family, recovery has to come first.
Without it, I fail EVERYONE.
Right now, I don’t see how saying much to her will be helpful in that regard.
I’ll be nice. I certainly won’t be mean.
And despite what has happened in recent years, I expect her to behave the same way.
After all, the day will not be about us. It’ll be about my cousin and the awesome gal he’s marrying.
Step 1: We admitted we were powerless over (insert addiction) — that our lives had become unmanageable.
Mood music:
I am powerless. Or, you could say, my addictions have absolute power over me. Even when sober and abstinent, they are right behind me, doing push-ups, waiting for my one reckless moment of weakness.
Now that I know this, life is a lot better. I can do what I must to be well and I’m a lot happier and healthier for it.
The problem with addicts is that we’re experts in the art of denial. It takes many years of damage before we are ready to even consider that we have absolutely no control over our lives.
When we really hit bottom and spend some time there, things become so desperate that we become willing to admit how weak we are. How pathetically powerless we are. When that happens, we arrive at the first of the 12 Steps of Recovery. Simply put, admitting there’s a problem is the first step in dealing with the problem.
My most destructive addiction involves binge eating. That is followed by other addictions: to alcohol, tobacco, caffeine and, to a lesser extent, pills.
I’ve often lamented that mine is the most uncool of addictions. We need food to survive, after all. This is certainly not what most of society would accept as a ânormalâ addiction.
Still, it makes perfect sense that food would be my problem.
As a kid sick with Chronâs Disease, I was often in the hospital for weeks at a time with a feeding tube that was inserted through the left side of my chest. Thatâs how I got nourishment. I wasnât allowed to eat or drink anything. At a very early age, my relationship with food was doomed to dysfunction.
It didnât help that I was from a family of over-eaters who would stuff themselves for comfort in times of stress and fatigue.
In our society itâs considered perfectly OK to indulge in the food. Time and again, Iâve heard it said that overeating is a lot better than drinking or drugging. But for me, back when I was at my worst, binge eating was a secret, sinister and shameful activity.
Hereâs how it works:
You get up in the morning and swear to God that youâre going to eat like a normal person. You pack some healthy food for the office. Then you get in the car and the trouble starts before the carâs out of the driveway. Another personality emerges from the back of the brain, urging you to indulge. It starts as a whisper but builds until it vibrates through the skull like a power saw.
The food calls out to you. And youâll do whatever it takes to get it, then spend a lot of time trying to cover your tracks.
Before you know it, youâre in the DD drive-thru ordering two boxes of everything. It all gets eaten by the time you reach the office. You get to the desk disgusted, vowing to never do that again. But by mid-morning, the food is calling again. You sneak out before lunchtime and gorge on whatever else you can find, then you do it again on the way home from work.
You pull into McDonaldâs and order about $30 of food, enough to feed four people. From the privacy of the car, the bags are emptied. By the time you get home, you wish you were dead.
The cycle repeats for days at a time, sometimes weeks and months.
For many years I hid it well, especially in my early 20s. I would binge for a week, then starve and work out for another week. That mostly kept the weight at a normal-looking level.
Call it athletic Bulimia.
In one inspired episode, I downed $30 of fast food a day for two weeks, then went a week eating nothing but Raisin Bran in the morning, then nothing but black coffee for the rest of the day. After the cereal, Iâd work out for two hours straight.
In my mid-20s, once I started working for a living, I kept up the eating but couldnât do the other things anymore. So my weight rose to 280. In the late 1990s I managed to drop 100 pounds and keep it off through periodic fasting.
Then I started to face down what would eventually be diagnosed as OCD, and I once again gave in to the food. The gloves were off.
The binging continued unabated for three years. The weight went back up to 260. I also started to run out of clever ways to mask over all the money I was spending on my habit. I was slick. Iâd take $60 from the checking account and tell my wife it was for an office expense or some other seemingly legitimate thing. But sheâs too smart to fall for that for long.
One I admitted I was without power over all this insanity, I was ready to do something about it.
That’s when I discovered Over-eaters Anonymous (OA), a 12-step program just like AA, where the focus is on food instead of booze. I didnât grasp it immediately. In fact, I thought everyone at these meetings were nuts. They were, of course, but so was I.
Thing is, I had reached a point in my learning to manage OCD where I was ready to face down the addiction. If it had to be through something crazy, so be it.
Through the program, I gave up flour and sugar. The plan is to be done with those ingredients for life. Put them together and they are essentially my cocaine. I dropped 65 pounds on the spot. But more importantly, many of the ailments I had went away. I stopped waking up in the middle of the night choking on stomach acid. The migraines lessened substantially. And I found a mental clarity I never knew before.
I canât say Iâve slaughtered the demon. Addicts relapse all the time. But I have a program I didnât have before; a road map unlike any other.
My odds of success are better than ever.
But before I could get there, I had to unravel the wiring in my head, learn to live with a mental disorder and then make a bold change in my way of eating.
Itâs not cool at all. If youâre laughing because I let the food drag me to such a state, I donât blame you. In a way, it is funny. Crazy people do stupid things. And stupid is often funny.
I’ve written at length about my brother Michael, who died of an asthma attack when I was 13. That experience will test any average kid, and I was no exception. The loss infused a deep reservoir of fear and anxiety in me that would bubble over many times over the years.
But something else happened that would make me feel strange and alone for a long time.
I started my life as the youngest of three kids, the proverbial baby of the family. Michael was the oldest, and in the Brenner family much has always been expected of the oldest son.
My father was the middle child of his generation, but he was the only son. My grandfather, who came off a boat from the former Soviet Union with all the typical old-school values, expected the world of my father. As my grandfather descended deep into old age and illness in the mid-1960s, my father became increasingly responsible for the family business.
Growing up, my older brother became the one my father leaned on the most. Michael was encouraged to chart his own course and was studying to be a plumber. But he was expected to help out with the family business and do a lot of the grunt work at home.
I was the baby, and a sick and spoiled one at that. I came along almost three years after my sister Wendi, and by age eight I was in and out of the hospital with dangerous flare ups of Crohn’s Disease. I got a lot of attention but nothing hard was expected of me. I was coddled and I got any toy I wanted.
The result was a lower-than-average maturity level for my age. At age 10 I acted like I was 5 sometimes. I would crawl into bed with my father for snuggles, just like a toddler might do.
During Christmas 1980 — the first after my parents’ divorce — I wanted it to look like Santa had come, even though I knew by that point that he didn’t really exist. I clung hard to the delusion, because my parents played Santa all the way up to their last Christmas as a couple, when I was nine. So on Christmas Eve 1980, I took all the gifts I had already opened and arranged them as if Santa had dropped them in my living room. I even wrote a “To Billy from Santa” note. Christmas morning I got up, went in the living room and expressed all the excitement of a kid who discovers that the jolly fat guy had come overnight.
My maturity level hadn’t changed much by the time I hit 13. I probably regressed even further right after my brother died. But as 1984 dragged on, I was slowly pulled into the role of oldest son.
All the stuff that was expected of my brother became expected of me, and I wasn’t mentally equipped to deal with it. My brother had a lot of street smarts that I lacked.
As I descended into my confusing and angry teen years, I would be sent on deliveries for the family business. I’d get flustered and lose my sense of direction. One time my father sent me to Chelsea for a package. It was 4:30 and the place I was going to was closing at 5. I got there at 5:10 and had to drive back to Saugus without a package. I felt humiliated and ashamed.
As I reached my 20s all that immaturity and feeling of inadequacy hardened into an angry rebellious streak. I started getting drunk and stoned a lot and would hide behind boxes in my father’s warehouse, chain-smoking cigarettes and binge eating while everyone else did the dirty work.
I spent three years hiding in a community college so I wouldn’t have to work. I had no idea what I wanted to do with my life, though I saw myself a poet and musician.
I try hard to remember the point where I started to finally act like the oldest son and accept responsibility for my life. There’s no single moment I can think of, though I trace the turning point to when Erin and I started dating in 1993.
I stayed selfish for many years after that, but I had at least found my career choice and work ethic. My work ethic would become excessive like a lot of other things in my life, but the feelings of inadequacy would linger.
Every time I got a raise or promotion, I’d call my father, eager to show him how I was moving up in the world and becoming the oldest son he always wanted.
He would ask how much the raise was and I’d tell him.
“That’s it?” he would ask.
Never, ever good enough, I thought bitterly.
As I’ve gotten older, I’ve come around to see and respect his point of view. Becoming a parent probably pushed me hard in that direction. I realized along the way that Dad was doing his best to teach me how to be a man and fly on my own.
He wanted me to understand the value of a dollar and a hard day’s work. He wanted me to understand what it was like to care about things other than myself.
Slowly but surely, I figured it out. Thanks, Dad.
Still, to this day, I still need to work at it.
All the confusion and anger over going from the baby to the oldest son has settled into gratitude. I have an amazing life and the inner piece that has always escaped me. I wish my brother was still here to corrupt his nephews, but in a sick sort of way, maybe his exit from the stage was required in order for me to have a chance.
That too might be delusional thinking, and make no mistake: I’d still give up a large percentage of my personal growth to have him around today.
But as this whole experience demonstrates, it’s not about me. Today I’m the oldest son and I think I’ve finally gotten the hang of it.
When you hear about people with conflicting personalities, the image of an insane asylum patient comes to mind. If that were indeed the accurate picture, we would all be committed.
Mood music:
The truth is that we all have more than one personality. We can be one person in one group setting, then go to another group setting and become somebody else.
I don’t think that’s such a bad thing, either.
This all came up a couple weeks ago as I had coffee with my friend Audrey Clark, a Marblehead, Mass. native and singer-guitarist for The 360s. We were talking about how we can be at ease and talkative in a one-on-one setting or in a small group, then go off to another group setting — in this case, a crowded rock club where the lighting is dim or nonexistent and people don’t look like they do on Facebook.
For me the multiple personalities are something I treasure.
I consider my multiple personalities a strength, with a bunch of recovery tools rolled up into one happy mess.
Thereâs the history nerd who has his work stations at work and home festooned with busts of historic figures, old news clippings and framed copies of Lincolnâs Emancipation Proclamation and Gettysburg Address and a variety of nautical artifacts. The guy who put his family in the station wagon last year and drove to Washington D.C.for a private tour of the White House West Wing (a friend works there).
Thereâs the security scribe who writes about the world of hackers, security vendors and government cybersecurity officials for CSOonline and CSO Magazine. On this one I actually have multiple personalities within multiple personalities.
Many of my friends in the security industry are a colorful mix of characters. Some are the hacking types who dress like rock stars and share my musical tastes. Others wear a suit and tie every day and work for multi-billion-dollar corporations and government agencies, and they often share my love for history. I float easily between both camps.
Faith is connected to everything I do. I live for God â or try to â and in all my other pursuits thatâs what drives me. Iâm active in my church community, getting up and doing readings at Mass and helping out with programs like RCIA. My personality is much different from that of my fellow parishioners, but we get on well, bound by a love for our families, children and God.
Finally and most importantly â I actually consider this central to my Faith journey â thereâs the family man, the one who adores his wife and children and tries hard to make decisions that put them before work. I donât always pull it off, but in the end, they are THE MOST IMPORTANT forces in my life. Well, God is, but my Faith does compel me to put family first. Itâs complicated, I know, but Iâm sure most of you understand.
All these things make for a challenging life. But I wouldnât change it for the world.
Ever since I lifted the chains of depression, OCD, fear-anxiety and addiction off of me, I’ve loved all the jagged pieces of my life all the more.
So if you have multiple personalities, donât hide them. Donât run from them. Embrace them.
As long as those personalities arenât dominated by the darker forces of human nature.
I found a great article on Newsmax.com that describes OCD perfectly. It also helps the reader figure out what to do with a diagnosis. A lot of it is what I’ve already written about, but it’s less personalized. In this case, that’s good.
Mood music:
http://youtu.be/vM2KI0Fs-fI
What follows are excerpts and how I relate…
OCD symptoms are usually associated with a condition of debilitating and disabling anxiety. Itâs not easy to diagnose OCD and determine what causes OCD, as this condition does not have many clear-cut signs and symptoms.
They got that right. My condition used to be rooted in debilitating anxiety. Just this morning I wrote about how my anxiety would disable me in times of global economic uncertainty. But many times my trouble looks like other things. There are days when I develop a dense tunnel vision and can’t see the world around me because I’m so focused on one obsessive thought. That is OCD, but it is also a characteristic of ADHD. I also get scattered and lose my ability to focus. That’s an ADHD-like trait, too.
Obsessions and tell-tale OCD symptoms alone characterize this condition and help doctors diagnose it. OCD in children is characterized by an unexplained fear of germs and contamination, and children tend to wash their hands repeatedly.
In adults, OCD manifests in the form of repetitive and unwanted thoughts, and the obsession eventually becomes a thought pattern that is very tough to get rid of. These thoughts can be in the form of words or images and cause anxiety as well as distress.Â
The question âDo I have OCD?â can be easily answered if you think you are someone who is in the habit of thinking excessively about one thing all the time. You neither have any power nor any control to neutralize these images and thoughts.Â
OCD symptoms include uncontrolled checking of things, excessively monitoring things, repeating the same words silently, excessive cleanliness, an innate fear of diseases, injury, and illness, and repetitive, continuous body movements.
I like the descriptions, because I know all too well that they are accurate. So let’s say you have these symptoms. Now what?
My experience is that you have to start with therapy. Getting your memory shaken until all the skeletons fall out is a vital first step. You have to learn how you got this way and what the triggers are. Along the way, you’ll hopefully get an accurate diagnosis. But as stated above, that’s not always easy.
My diagnosis was slow in coming, though I always assumed I had what I had. When I first started getting help in 2004, that first therapist resisted giving me a diagnosis. For one thing, it was still way to early to pin an acronym on my demons.The therapist also hated diagnosing people because she felt a diagnosis was just a label that never tells the entire story.
My third therapist finally gave me a diagnosis in the spring of 2006.
I sat there in her office, staring at the floor as I told her about the old therapistâs dislike of labels.
âWell, do you have obsessive thoughts all the time?â she asked.
âYup,â I said.
âDoes it make you do compulsive things?â she asked.
âYup,â I said. âI binge eat all the time even though I know itâll eventually kill me. I just canât stop.â
âDoes it cause disorder in your life?â she asked.
âAbsolutely,â I said. âEvery day is an exhausting hell.â
âWell, then we may as well call it what it is,â she said.
Obsessive Compulsive Disorder.
Was I misdiagnosed?
It really doesnât matter. I had a problem that was destroying me from the inside out. Putting a label on it helped me because instead of smoke and shadows, I finally had a way to see my struggle in a more concrete fashion. It had finally taken a form. I could see it, therefore I could punch it. Punch it I did, repeatedly.
It always gets back up and I have to keep throwing punches. But itâs better than trying to swing at shadows.
Itâs a tricky thing, because in plenty of cases people do get misdiagnosed and the results are damaging. It can lead to prescriptions that donât get at the root problem, making you worse.
In my case, the diagnosis was accurate. The treatment turned out to be right on, at least.
I think it was more of a relief than cause for a deeper spiral into depression. Because I had something to call it, I could move on to the next phase of recovery.
I still had many bad days after that. Some of my worst days, in fact. It would still be another two years before I could bring my addictions to heel.
It would be stupid for me to tell you not to freak and backslide after getting a diagnosis. It can be a frightening thing.
The biggest fear is that everyone will define you if you go public. That didnât happen to me. At work, Iâm judged on how I do my job, not on my disease. Of course, the OCD sometimes fuels some of my best work, which makes that less of a problem.Â
To me, the lesson is to not let a diagnosis be the excuse to live a less than worthwhile life and give in to your darker impulses.
Like anything else in life, you gotta make the best of it.